Where did I put my life?
In the recent months my memory has been insane. I could have just touched what I am looking for and not find it for weeks. I have lost two pairs of bifocals, not cheap... and I see things wrong like my cat walking into a room and he didn't he went on the chair. I lost my keys three times in one day.. and once in the grocery store. My eyes are very fuzzy, the opthamologist said that there is stress on my myopic muscles which get fatigued and tired from focusing all day. If you find out something to do to help I am all eyes...HA! But it is true that we are not alone... many of us share these unfortunate symptoms...I wish you all good luck and no pain... I have never had to wear glasses except for the past year.
I dont know if anyone will find this of any use from the topics above, but here it goes....
I have Hughes syndrome and was at first asked to take a junior asprin daily. I suffer with the 'brain fog' - some days I dont know if I am coming or going. The headaches some days are unbearable too.
I also have that tingling in the limbs that is mentioned, normally it starts at the back of my head and travels down my arm. I often have difficulty speaking when it is like this. At one time during this I completely lost the ability to speak and my vision was at a total blur, although only for a few moments. So I went to docs who gave me an MRI and EEG, which came back normal. I wasn't given an explanation for what was happening to me other than they were perhaps 'dizzy or fainting spells' brought on by the stress.
Anyhow, I was prescribed 75mg of Plavix (i think this is the UK brand name though) and many of my symptoms associated with the Hughes syndrome have really improved.
So for those not on this medication maybe you could enquire?
I can relate
Hi my name is Angela and I have just been dx with lupus too. I have had it for at least 5 years that I know of going back over my medical history. The numbness and tingling in my arms and the memory loss is what got me some medical attention at first. I felt like an idiot because I am a Instructor and Director over a pharmacy program at a college here in Idaho. I pulled up one day and couldn't remember how to lock my car door (something I have done thousands of times). I forget things infront of my class and it gets embarassing at times. I totally know what you are going through. I had ulna nerve decompression surgery in Jan. of this year. Thats what opened up this whole can worms that can never be shut. I am currently not in remission and will have to leave my job soon becasue my body is saying it needs help and a break. Lupus is hard thing to deal with. My kids don't quite understand why mom is always sick. Drives me nuts. Wish I could feel healthy like I use to years ago. But oh well, there must be a reason I suppose. I would love to talk with you more so you and I could unload some frustrations and hopefully so funny things. Should you need to talk and you use MSN messenger feel free to contact me. Ladee2you is my name with MSN. I really hope you hear from others and just know we are all in this together. We may have a great support group with family and friends but I know that know one really understands unless they suffer from lupus themselves. I am a total believer in this site and have just recently joined. Contact me and we can talk and god bless you and your loved ones. Angela
Same thing here
It is so weird actually that I just happened to read your post. I just had this happen again a few minutes ago. It's hard to walk up and down stairs when they start blurring. At my work we have stairs and I seem to be just waiting for the day when I fly head first down them :(
And the memory thing? Again same here. I am a Fiscal assistant and work with numbers all day. I have been having to look up my codes lately when I've had them memorized for years. I actually had to search for the list cause I hadn't use it in so long. My poor dh now has to call me and literally say, get a pen and paper I need to tell you something. It ticks me off that I have to do that but he's right, I won't remember it if it's not written down. Course then there's the fact that I have to remember where I wrote it. LOL
I am not on prednisone so that can't be MY particular problem. I just don't know what the whole problem is. I told my dr I think I am in the early stages of Alzheimers or something. :( She says it's the Lupus issues.
I am so sorry you are having these issues, along with everything else that comes with this lovely disease. If you need to talk I am here.
Hi I have the memory thing going and my eyes get very blury and not from drugs...But does anyone have restless legs? It gets so---bad at night that it stops me from sleeping. It seems to only happen when I'm having a flare. thanks for all the good info. I don't know why but it helps knowing other people are going through similiar stuff. Not that I want anyone else to be in pain, but in some crazy way it does help. sss
Wow, I had no idea so many of us have these problems. I went to an eye specialist and he couldn't tell me much but that it probably was from my lupus and diabetes. I think I'm seeing fine and then I pick up something to read and realize how blurry it is. To me it's like I've just waken up and can't seem to focus. I have found that that comes and goes so I just try not to read (I love to read) too much when I'm having the problem. I also get floaters that look like text scanning by. I see an intrusion in my vision that looks like a little piece of paper with letters flashing by on it. This usually appears after stressful situations and goes away after a few days. Pretty scary.
My hands go numb a lot. I have lots of trouble at night. I wake up and my whole arm will be numb. I get that arm kind of feeling again and then I wake up later to find my other arm numb. Very frustrating. Funny thing I have found sleeping with a stuffed animal helps keep my arms and hands from going numb in the night. Somehow the positioning of my arms is different when I am holding a pillow or stuffed animal.
Memory thing is really frustrating me lately. I teach a class of 4 and 5 year olds. There are times I just stare at one of them desperately trying to remember their name. I feel sooooo stupid. I know all their names. When I do that several times in a day I know it's my lupus. Over the weekend I have been misspronouncing words left and right. Really scaring me because I am starting to understand how stroke victums must feel. I am forever having to ask people why I came into a room.