Last year whilst in Tunisia for a holiday I came out in what I can only describe as little blisters in one patch around my neck and on my shoulder on one side. I also felt extremely tired. I spoke to my GP on my return he said it sounded like shingles (no nerve pain) I'm now wondering if it was my lupus. I haven't been anywhere that sunny since so I guess I'll have to wait till the next holiday to find out
I have the same problem with my eyes too I always wear sunglasses outside and have blacked out my bedroom windows, I know with the true friends thing kind of hurts did me too. It's hard for people to understand, it took me a while to accept that but at least I have my family and my cat. I actually got my cat, Hunter, like a month before I first got sick and he really helped me get through the bad times when my friends and some of my family didn't.
That explains the migraines!! I spent 6 years of my life thinking that I had arthritis, I used to have episodes of migraine but I always thought it was just stress, It all makes sense now, unfortunately It's quite hard for me avoid sun because I live In a tropical place, so I have to learn to deal with it. =/
My cousin has sle and she goes tanning...I remember she wanted me to go tanning with her before her wedding last summer (this was before I got diagnosed), and I got really badly burned. Why is it that some SLE people are able to go tanning while others, (like me), need to really watch it in the sun?
Hi-Great thread. I would like to add that research done at the University of Pennsylvania Medical School by Dr. Virginia Werth has discovered a genetic basis for lupus photosensitivity. She believes that research in this area may give insight into what triggers the development of lupus.
I have a question. I don't know if this is because of the sun or if is just coincidence or who knows maybe its my imagination. After I have been in the sun for even just a 15 minutes or so, I my arms and face start to itch. Has anyone else experienced this?
So the short answer is yes... i do start to itch if I haven't taken precautions.
Me too! I get severe reactions to minimal sun exposure(better now that I have been on plaquenol for 11/2 yrs)
I get itchy and rashes all over not just where the sun hits-I rarely go out without long sleeves and sunscreen.