I've got it -- Lupus Diffus - Nephritis
I was diagnosed the end of June 04 after only 6 months of a thought of being diagnosed with Carpel tunnel (February 04). Funny thing is when I went to the neurologist I didn't have carpel tunnel. Kidney failure and almost death brought the diagnosis. I didn't have any of the other symptoms of Lupus and am very lucky. Although right now I am on heavy steriods and cytoxan every 3 to 4 weeks. Gone through three treatments so far, hair is falling out, gained weight, my face looks like someone have filled it with helium and I feel pretty ugly right now.
Again, I do feel lucky, I have a great bunch of doctors, my joints don't hurt and my kidneys after the biopsy shows no damage. Never being sick before, it just feels like an inconvience and I am tired of the novelty of being sick. I do wish I could put it all behind me and go forward. I think I am more afraid of the unknown and what will or might happen. Its that lack of control and not being able to see this monster, feel this monster and then get rid of it.
Thanks for listening.
You will be fine - Christie
Hi Christie -
I just wanted to give you some words of encouragement. I went through almost your exact same scenario. I completed the six months of cytoxan treatments 4 months ago. Now I have been on CellCept for 3 months. Yesterday, I got my blood results and everything tested normal!!!
I think you are probably at the worst part of the Cytoxan treatment. I know as my treatments went on, it got harder and harder. Also, losing your hair is incredibly hard. I had the puffy face, too. But just keep in mind that there is a light at the end of the tunnel. It is tough now, but the treatment can work & will be over before you know it.
Good luck! Hang in there!
I will think of you on Friday
I will be thinking of you on Friday when you have your treatment. I hope it goes as smoothly as possible.
You will look great for your daughter's graduation. My hair actually started to come back shortly after my 5th cytoxan treatment. It grew (& continues to grow) incredibly fast. It sounds like you will be done with the treatments by Christmas, so you will look beautiful & feel great for the graduation!