I only check in every now and the
I only get to check in here every now and then. Hope all is well with you.
Lupus-Like? I'm Mixed up Lupus
Good morning :D I made one post on this site last year but I have memory lapses (lupus-related :? ) and forgot that until this morning.
My doctor diagnosed me last year as SLE and the flare have been a year-long struggle for me, my family, and my doctor. Every week some new debilitating and painful area of my body ravages the tissues of my body. She began calling my disorder "Lupus-Like" and then "Lupus-Like with Systemic Autoimmune Connective Tissue Disorder". Hence my member name Mixed up Lupus. :)
This rheumatologist also says my "sensitivity" to pain is the worst she has ever seen. :oops: I know I have a lot of pain but I also know others who suffer with SLE and I am continually amazed at what doctor's say to their patients about pain. :x
I know my pain is real, I led a very active life despite years of pain, missed diagnoses, insults from physicians that it was all in my head and I was "too sensitive" and hypochondriac or Munchhausen. :mad: I am appalled at what comes out of the mouths of physicians who say they understand Lupus and Autoimmune diseases but don't believe anyone should be on anything stronger than Lortab :!: How ignorant (uninformed) :twisted: (my family has physicians and nurses and they share their diagnoses for my problem and their "helpful" information that is just as hurtful and similar to many of the physicians I have seen this year.) :cry:
I was on the verge of crying all the time but am getting better.I begin my day singing old hymns, stretching, playing with my puppies and getting control of my pain with herbal hot packs. I found a small paraffin wax bath for hands spa on clearance sale and it helps, also. 8)
After reading many postings I realize I have found a safe haven for my questions, feelings, and loneliness.
So, I will be checking in when I can and read and enjoy meeting new people and I hope new friends.
P.S. **Thank you for listening, my postings will be shorter from now on (I just read the BB rules) have a blessed day.
Mixed up Lupus :)