Scared Mom, and brand new here
Last night my husband and I found out that our daughter, Mary (my stepdaughter, technically) MAY have lupus. She and her sisters all went for physical exams a few weeks ago as required by their schools, and they took blood samples. Mary's came back "abnormal" and tested "positive for the possibility of lupus." Now, I'm hearing this third hand -- the info has traveled from the doctor to Mary's bio-mom to my husband to me. Mary has to wait another week to go back for testing by a rheumatoid specialist (we have to wait for the insurance to authorize it! :x )
So naturally we're scared. Lupus has never affected anyone we know or anyone in our families. Like I said, I only found out about this yesterday, but I've already read tons of stuff on the Internet, and consulted my mom who's an RN. The weird part is that Mary's only symptoms are hair loss and severe fatigue. She doesn't have any rashes or joint pain, or fever as far as we know. She gets severe headaches, possibly migraines, but I haven't seen that listed anywhere as a lupus symptom. The only medication she's been on recently was for acne, and she takes Ibuprofen for menstrual cramps.
Mary is 17, half Caucasian and half Puerto Rican, and there's no family history of lupus.
I want to know what they might have found in her blood that suggests lupus, especially considering the apparent lack of other symptoms. The doctor's on vacation as of this morning, so we're not going to know anything for a week or more. The waiting is killing us! If anyone has any words of experience that might help, please let me know.
Re: Scared Mom, and brand new here
My nick is Marinera, my name Maggy, I have lupus and been diagnosed for more than 20 yrs now, ( I'm 46 :) _ I read your message about your daughter getting a positive diagnose of lupus. Tell you what, in my family one of my sisters and me had been diagnosed with lupus but I was the only one that had the complications, so that means that not always a positive lupus diagnose will complicate your life. During the flare ups all you can do is help her with support and encourage her to follow her treatment, but then you will see there will be time where she will be free of everything , feeling great, that was the time when my dad encourage me to live more , and fight for what I wanted, I went to College, got married had a wonderful son, traveled a lot and remarried. ( A lot isn't it? :wink: ) ( I forgot to tell you my lupus complications started when I was 3 yrs old).
So you just try to learn about lupus , there is a lot of info in the net, feel free to ask, and just give her the support she will need when not feeling so good. There are a lot of treatments that can help depending on what type of complications the patient develops. So life will go on , just tell her that life won't stop because of the wolf. Teach her to keep fighting to reach her dreams in life.
Hope to read you soon,
"Cariņos" from this corner of the planet,