Not sure what to think...
So I went to the doctor because I was losing some hair. He did a variety of tests, thyroid and other stuff, and referred me to a Rheumatologist because of a "possible positive ANA."
She repeated the test and did some more, and looked me over head to toe and asked a bunch of questions. At the end of the visit, she told me she didn't think I had lupus -- I didn't really have the right symptoms -- but we'd do the tests to rule it out and figure out what to do next.
Well, 3 weeks later, we sat down to go over the test results, and most were negative. However, I had a positive anti-Smith antibody test, which she said is 100% exclusive to Lupus. She was surprised given my lack of other symptoms, but said maybe I wouldn't have any other problems besides the hair loss. We are repeating the test with another lab, and those results I should get in about another week.
Meanwhile, in the last week or so, I've had several days of "hot flashes" (sort of like a mild fever for a day or so, but nothing significant on the thermometer), achy joints, and general fatigue. It's the sort of thing that a few months ago would have made me think I was coming down with a cold or flu or something. It comes and goes, though, and I haven't gotten sick with anything else.
Do these sound like Lupus-related symptoms? I am a little hesitant to hang it on the Lupus hook since I feel like I must just be psychologically trying to make it "fit." The symptoms are real -- I really do feel run down and achy and feverish -- but it seems somehow "convenient" that 2 weeks after my positive blood test, I would all of a sudden start having Lupus-like symptoms.
Any advice? Sympathy? Anything? :oops:
Exactly what I've been wondering...
You hit my next question right on the head... Everything I've read says that there's no one blood test that can be used to diagnose lupus. However, my rheumatologist said the anti-SM is 100% exclusive to lupus. How can both be true?
BTW, I have read the symptoms posts and almost all the newbie stuff -- you are a fantastic resource, Saysusie! And what a wonderful community of support. Thanks to all for a great place to find answers (and more questions, too). I'll definitely keep reading.