I so UNDERSTAND how you are feeling.
When I was first getting sick I had such vauge symptoms. All I had was pain everywhere! I kept getting infections. My kidneys werent keeping up. Otherwise I was ok. I had High sed rate and CRP. My HCT was low. I had a slightly high RH factor. All other labs where good. But I was told I have Fibromyalgia and nothing else. I stayed with my same doctor for the next 3 years and was told the rest was in my head. That even though I could barely breath it hurt so bad it had nothing to do with FM. That the asthma was also unrelated. They but me on anti depressants. And told me to see a theripist. I did thar, nothing was working. I got worse and worse. I was at my wits end. I started talking to other on a chronic pain message board. They told me it sounded like lupus. Then it clicked. I have an aunt and 2 cousins with lupus I have 3 cousins with RA and another aunt with RA. Onemore cousin with Sclaraderma. So it all run in my family, then my MD tells me lupus doesnt run in families. I was angry and in so much pain I couldnt move. My hands where red and swollen. I had hot joints. I was in pain noone should have to be in. I was only allowed 30 T3's a month. It barely touched the pain. THe rest of the time I was taking 800mg of ibruprofin 2 times plus a day. It did nothing. Md would not give me anything else. Finally they sent me to see a rhuematologist. They did a ton more tests. I waited for weeks but heard nothing. I had rashed since i was a young teen on my face, but it was kind of over looked as well. After waiting I went to a new set of doctors. They right away found that I had many thingd pointing to some autoimmune illness. I was dx'ed that day with kind of a broad name Mixed connective tissue disease. I was put on prednisone and given many other meds to get it under control. Then within a month started having heart problems. In fact it almost stopped at one point. I was so angry! Had they only checked me sooner. Not long after I then also started having seizures. For the first 4 years it seemed I was sick almost always with very few breaks in flares. There were times I wasnt sure if i was going to live through it all. But I have. Now mostly the illness is under control. I feel very lucky. I taken many meds over the years. Now I try to tazke as few as possiable. I still face issues with exhaustion. I am tired so tired. I have pain in my joints. Pretty much as part of my everyday life but nothing I can't live with. I also have migrains. But those seem to come with stress. A year after I changed MD's I got a letter from the old MD showing what my new doctors had said all my blood test were a mess. Somehow they just hadnt made there way to me. Since I have been dx'ed with lupus with kidney heat and brian imvolvement fibromyalgia and IBS. I think they are pretty much all related. My asthma has improved 10 fold with the treatment of lupus. I took shots of methotrexate for a few years but have choose to go simple and get off all the meds I can. My doctors are good to my when it comes to pain. They give me pleanty of pain meds. Whats important is to find a doctor who will listen to you and give you the treatment you deserve. Nobody should have to suffer with chronic pain. Not when there is so many kinds of pain control avilable. Don't give up. It will happen. You will get the meds you need. Maybe you could aslo think of getting disability. I am in the process myself of getting it approved. I wish you the best of luck and if you need support seems you have come to the right place. Forums like this have been of great comfort to me since the start of all this. Lots of hugs Lucy