Yippee! New site updates with more features!
We just updated our site with more features for members. You can submit articles from the "portal home" link and even play games.
You can hear SaySuzie singing on the song "Agnus Dei" in our online music section.
I have some of my own personal piano selections there too if you need a little break to relax.
Ok, so maybe the games and music are a little trivial for the subject matter of this site. But the portal home section will allow members to submit articles that future members can access for support.
I hope you enjoy it!
Newbie Taking A Day At A Time
Hi Everyone! Susiesay, are you the leader of all the topics or just one? I really would love to meet new friends that can understand and help one another. I live in Marin County, I don't know anyone (but hear a lot of people) have Lupus..The Lupus Foundation is supposedly starting a support grp. here. I am very lucky that my disease has not caused me any life threatening events though pain and fatique is chronic in my life. I had neck surgery December 2002 and on October 19th, 2002 I woke up not able to move because every joint in my body hurt. It took me 5 years to get enough courage to have neck surgery (2 fusions) and now I have been diagnosed with Lupus. My rheumo initially thought I had Polymyiocitis, which I had to endure unbelievably horrible procedures to prove wrong. At this point in my life, I do what I can, lead a spiritual path, love my dog and get lonely at times. Sooooo, what's new with U?????? ;o)