Just diagnosed Thursday and had my first IV meds of Steriods
My name is Amy. I am 28 years old. My aunt has had Lupus for about 4 years now. I see her suffer day in and day out. Her sickness, ups and downs. When I started having problems for the past year or so she told me to go see her doctor. Imagine my suprise when he looked me straight in the face and told me I have Lupus. I always thought it skipped a generation but I guess not. He stated the Lupus has attacked my brain. My brain is swollen and some of the blood flow can not get to certain areas of my brain. I am terrified. I was by myself. All I could think of was I dont want to suffer like my Aunt. I have young children they cant see me like this. I went from crying my eyes out to being in shock. He told me I need to come back today (Friday the 16th) to start a series of IV medicine of steriods. I cant quite remember the name of them. I just know it gave a metal taste in my mouth. I have pretty much felt bad ever since taking it. I have to go back Monday and redo this again and Tuesday go back to the doctor. Everything is going by so fast I just dont know what to think or do. Please give me some advice. I still dont believe I have this. I cant. Everytime I think about all I do is cry. I need some support and I hope this group can help me.
Thank you very much