Lupus and colds/flu....help!
Hello everyone! I'm new to your site. I've had lupus for over 6 years. Over the past 5 months I've been sick every month with a cold or flu or sinus infection, sometimes with lupus flares, with a break of about two weeks inbetween each onset. My rheumatologist tells me this is not abnormal during flu season but I think we're missing something. This is not normal for ME! Labs came back benign except RBCs were out of range on the high side along with Hematocrit. Does anyone know what this means?Yesterday I flared badly and am still flaring today with a mild runny nose. All of my symptoms are that of a classic lupus flare (which I've had much experience with) except for the upper respiratory stuff. I used to get these 24 hour flares with cold-like symptoms; somewhat similar to this. Has anybody else out there had a similar experience? I read some articles about chronic rhinitis and Chronic Fatigue Sydrome and wondering if lupus would be included in that.
Five months of this now...it's time to reach out. I welcome your comments! I'd like to know I'm not alone![/b][/u]
Colds/Sinus plus Photosensitivity
This is very helpful, if nothing more than knowing that I'm not crazy. My doctor hasn't really committed to saying that there is a definite connection. I think we, as patients, know these things. Each case is so different from person to person. As for the flare I'm having now, no new respiratory symptoms have really surfaced and my Dr. said it was from sun exposure this weekend. I know I am photosensitive but I refuse to wear long sleeves when I'm gardening (it's too hot!) and just take my chances (I do wear sunscreen and a hat). So, for you out there who are newly diagnosed and wonder if it really can happen, yes, it can, and it does, and it hits hard and fast and throws me for a loop every time. Getting back to the colds/sinus issue though, I've been sick every month since November and have experienced a couple of related flares. I have yet to have more than two good, healthy weeks in a row. I reach that two week mark and I get slammed again. Thanks Saysusie, for knowing how I feel! :D
More info on chronic sinusitis/rhinitis
I did find out more about this, although it may not be specific to Lupus, it is nonetheless interesting to people like ourselves who suffer from this atypical symptom. There was a study some time ago that suggested a link between chronic sinusitis, and rhinitis (a fancy word for a runny nose LOL) with Chronic Fatigue Syndrome. Although CFS is a distinct illness, one wonders if these findings could be applied to Lupus patients as well because of our chronic fatigue....? The study was made up of people with CFS, allergies, and rheum. diseases including RA and SLE. It raised my eyebrow. Just thought you'd like to know. :idea: