I have a new symptom that I've never come across in my reading about SLE. I had a bad cold last xmas and was left with a very sore throat and great difficulty in swallowing. My md has tried various antibiotics and tests. After much consult she thinks the SLE has partially paralysed the muscles of my throat. I have some lesions as well. I'm scheduled for a gastoscopy (sp?) which I am so not looking forward to. Anyone out there have this problem and what is the outcome if it gets worse? :? Oluwa, if you are reading this, I lost track of you - hope you are well.
Many people with Lupus also develop dysfunction of the thyroid. I've heard of enlarged thyroid causing voice changes and difficulty swallowing.
Also, because inflammation is a predominate symptom of Lupus, one can suffer from inflammation of the throat muscles which can cause strep throat. I've never heard of lupus causing paralysis of the throat muscle (or of any muscle). Perhaps you can ask your doctor to check you thyroid levels and if that is not the issue, ask him about some anit-inflammatory medications.
Perhaps someone else will have more information for you! I hope that I've helped a bit :lol:
Peace and Blessings
I do have hypothyroidism (diagnosed just a few months before the Lupus diagnosis). No one told me they were related (HT runs in my family - lots of us have it). I don't do well with anti-inflams - hard on my stomach. We'll see what the specialist says about what could be going on. Thanks for the info.
I am here, a bit over there, posting all over, keeping my mind occupied. I too get lost and forget what forum I have been despite the lovely reply reminders in the email.
My throat is thick, feels like it stops in mid swallow. Feels weird but mine is from Sjogrens, GERD and cervical spine surgery. Dry, hard to swallow a cracker alone. Belly shoots up acid and can burn all day long. Get hiccups after I eat. A symptom of GERD.
My food also can get stuck in the tube between my girls. Feels like a heart attack until the food moves down. The first time it happen...ooooh, I thought it was a heart attack. Went to ER and they left me in the Emergency cardiac Unit for two days. A crazy two days of nitroglycerin, headaches and nuclear tests. Heart disease runs in my family at a young age that is why all the tests.
But anyway..my food was stuck, like an old garbage disposal...then it finally dropped into the hopper. Humm, that is what a snake must feel like when they swallow an animal whole. Yucka. They prescriped Protonix, an acid pump inhibitor. I stopped taking because I was told it would interfer with Plaquenil. Hummm, that is what I forgot to ask my doctor, why that is...cause it still burns at times.
I also get a surge of mucus in my esophagus every now and then after I eat and feels like my lungs rumble.
Is your's like any of the above... that is all I know about the breathing/feeding tube symptoms and cause.
It gives you a good reason to drink milkshakes all day. I did for awhile and of course, I grew.
But you know what I haven't had a cold or the flu in eons. Gee over 15 years almost 20. Crazy, eh?
I haven't had a gastroscopy, but you'll do fine. My Mum and sister had one. Relax and swallow hard when advised too. Whatever the cause I hope it can be healed by a short regime and soon onto wellness.
In the next light I hope you feel better than todays,
I have been away on a bit of a holiday. Alexandra and I went down to Waterton, AB to do some camping. Cool cloudy days were great. She really enjoyed herself. Camping is definitely going to be her thing. The throat thing is 85% cleared up since I went back on my plaquenil (ya ya, I know). Makes me wonder if the planquenil just masks other serious symptoms/problems though. But at this point I'll take what I can get. Also interestingly, my cycle stopped when I stopped taking Plaquenil. I didn't really pay much attention to it until it came back when I started taking it again. Curiouser and curiouser. Anyway, it is a glorious fall day here. This is my favorite time of year. For the most part I can go outside ununcumbered by bulking clothing.
There you are, I was begining to wonder.
When is your gastroscopy? Or did you have it already?
Camping, crisp leaves crunching under the hiking boots...ah what a lovely sound I hear. I use to camp east of the Cascades in Washington. Absolutely beautiful. The last time I camped my husband and I spent the night in the back of our SUV and deciding to pass on our tent. Since then, I'd rather walk in the woods along a mountain river and find an evening rest at nearby lodge or hotel with room service. Forgo the tent under the stars. For me, too much work preparing.
It has been cooling off here..Pumpkin and gourds cover magazines. Orange, yellow and reds. I love earth tones. I love earth's colors in real time. Seeing the change of seasons, be it fall, winter or summer. It makes me smile, inside and out, sick or not. Remembering events from yesteryears. Hot chocolate, turtle necks...lilacs or the smell of mangos and coconuts. Each season I look forward even the hot summer days. Even if I have to hid as I wait for next one to begin.
I don't know how Plaquenil actually works or if it masks other symptoms like a pain pill can. Humm..I will have to look into it too. I mentioned somewhere in here I was considering a trial run off of it like you. I was going to propose the question to my doctor next week.
You are so poetic! I too love to watch the fall leaves turn and fall. Fall is such a time of freedom for me. Winter is too cold (I mind severe cold almost as much as severe heat now) to do much outside and in Alberta it can be 40 below and still have clear skies and brilliant sunlight. I too look forward to summer because our winter is long and somewhat confining for me. Roads are treacherous and since Alexandra came into our lives, I am less willing to risk it on the highways to go anywhere. But fall remains my true love. My husband and I are going to celebrate our 5th wedding anniversary next friday and are going away (back to Waterton) to stay in a lovely inn for three days. Alexandra is going to stay with my parents and be spoiled rotten for the weekend (I hope she agrees to stay there - keep your fingers crossed for me). I can hardly wait. I booked a "Romanticy" weekend pkg. It includes breakfast in bed, champagne and roses, 7 course dinner, formal in room tea, gift baskets, tours, etc. I am so looking forward to going, I can almost forget that I burned my hands sooo bad on the camping trip that they are swollen horribly and crispy :roll: I periodically go off my meds and always have (and probablly always will) I think mentally I am unable to process the idea that the Lupus will not go away and how will I know if I'm always hopped up on a zillion meds?!? Stupid I know, but I am unable to let go of the dream :oops: Anyway, fall blessings to all - may we all enjoy the glorious freedom of this special season.
I don't know where my head is. I forget where I post, so now I just go to my profile and see my last posts otherwise I just hang out at the first few posts...track me down and say what's up...
Wow sounds like a wonderful anniversay weekend. Our anniversary is coming up too. October 4. I've been too pooped to plan. The closest I have gotten to planning was ordering a hand carved wooden box from Poland. Wood is traditional. This year I am leaving it up to my husband. Surprise me.
My husband is traveling this week, two next week and back to all five days and next week five and again, and again..sigh. It is hard being sick and alone most of the time, in a new city.
I am crossing my fingers XX X XX ..all ten of them, that Alexandra agrees to stay.
I have pleurisy, oh joy. Had it for a spell, 2 plus months. My doctor passed it off two months ago, and well, so did I and lived with the unbearable pain. Silly and dumb me. He didn't pass me off this visit, yesterday..prescribed a few drugs and wait and see. If, not feeling somewhat better by the weekend, I'll be back of the scaryroids...steroids.
I also forgot to ask going off Plaquenil. My questionaire for him was long..
Sorry about your hands..how are they now? I can't imagine being so sun sensitive...but I can imagine the frustration and also checking if you still have Lupus. Not stupid, or I am stupid too. I think the same, but I am learning..pop the pill and enjoy life as much as I can.
Did you have your gastroscopy yet? If so, how did it go?
Back to summer weather here. 90 yesterday.
Enjoy the bubbly, the love and rose pedals...celebration...Happy Anniversary!