oh yeah, I know about those!
Hi there Dawn,
Oh boy, can I relate to those lymph nodes. Not the size of lemons, but definitely large, and all over--lymphadenopathy I think is what the docs call it. I didn't even KNOW we had lymph nodes behind the collar bones haha.
Well, mine came with low grade fever and sudden 20 pound weight loss. My rheumatologist didn't freak out, and wanted to keep an eye on things. I saw my cardiologist (for a heart check up) and he noticed them and freaked. He sent me to an oncologist, who gave me a workup, and after a month, found that I had an abscess in my right sinus (he found it on an MRI, again, on accident). He sent me to an ENT surgeon, and I had surgery to remove the abscess and to reopen the scarred-over passages between the sinuses. (I didn't even know they were 'bad'.) Anyway, I have had another surgery a few months later... and have yet to get these sinuses under control (looking at yet another one).
Anyway, my rheumatologist believes that this might be totally lupus related, but of course that's a hard greased-pig to catch. He thinks the abscess that they found (and subsequent bad sinus problems) was a fluke. Either that or he thinks that the sinus disease might be autoimmune, too--Wegeners something or other... I am not paying much attention yet--until I get a definite, I try not to get to worrying too much.
Anyway... I just wanted to tell you that you are not alone. Yes, I know how disconcerting it is to have lymph node swelling--the ones behind your knees, in your back along your spine, the back of your head... they are all very painful and very annoying when you need to move ;) Hang in there. I hope it passes quickly for you.
I still have them (they were first noticed back in September), and the fever is still going. (about 100.7 today). I am trying to just "get used to it", but sometimes that is hard.
Good luck, and if there is anything I can do to help, please let me know.