Answers provided on this forum
The research and/or answers provided on this forum are not meant to be used as a substitute for medical advice. The information provided and presented is for your education and your support. This can be a lonely and misunderstood disease and we want to help you to lessen those feelings.
We are here to help you in any way that we can and to offer each of you as much support as we can for as long as you need it.
But, please see your personal physician for professional evaluation of your individual cases!
Peace and Blessings To You All
I am sorry, I am not sure how this really works.
I have been sent from doctor to doctor for aray of systoms and illnesses. I finally started doing some of my own research. I was not raised by my bio-mom, so I found her and to found out the medical history. The usual stuff, except for Lupus. I never heard of it. I have been reading about it. So many things seem to make sense. I have yet another doctor's appointment tomorrow ( a new doctor I have not seen). I have been at the same library in Pearl, MS for 4years. Sick off and on, but, since last year about Nov. I have been real bad, even worse since Feb. 08 I am now down to the last 40 hrs of the family medical leave to secure my job. I told my boss' my theory of Lupus. You know that roll of the eyes look and she just doesn't want to work look. I'm sick of; it is all in your head, being a hydrocondric(spelling), lazy, over reacting, just go to the ER and get a shot, (but when you go, they think all you are is a drug seeking adict)
My husband is a really good guy, married 30 years, but even he has limits, drs, er rooms, hospitals, no money for bills, drugs for breakfast, lunch, dinner and bedtime. He says, "no wonder I'm sick!"
So, how does this work? You just get on and go where to actually post to talk to everyone and how? I have never done this before.
MCS - Multiple Chemical Sensitivity Syndrome
Hi goodnight to all....Its been quite awhile since i have been in here and i am still going through 'the question mark phase with my doctors.
About two mths ago..i went to another rheumy and he told me that he isnt gettin enough evidence to support the possibility of lupus but he still put that question mark next to it. :(
He did however told me that alot of people may have a positive ANA and have a condition called MCS - Multiple Chemical Sensitivity, where the immune system is very allergic to almost anything and its quite hard to target what are the causes.
What he did however was put me on PRIMROSE OIL for 3 mths to see if it would help boost my immune system....sigh...so far it did help a little with the back pains ( i am assuming its that ,cause primrose oil do help with inflamation)....all my other symptoms still exists though! :) I hate howmy hair keeps falling of..it scares me....i am on some calcium to see if this helps.....what to do about the hair anyone????
I have another appointment in August...hope there is more he can help me with....