I just thought I would throw out there that our support group is getting ready to restart in March. We run from March to November at 7pm on the 3rd Thursday of every month. We meet in the Ingersol Conference Room at Broadlawns Medical Center in Des Moines, Iowa. This was originally an LFA sponsored support group and many of the members are still officers in the local chapter. However, I think Broadlawns now supports the support group. Anyway we always have snacks and lots of great people if anyone is in the area, we would love to have you!
I am contacting you to see if Des Moines still has an active group or if you know of anyone that is available to to just visit with. I am more or less homebound now because of my sensitivity to UV-including flourescents...therefore a facility and its lighting is of importance to me. It triggers the cns & vasculitis. It would be nice to develop some other friendships where they understand the ups and downs in a given day. Katrina