Any teachers?? Any Canadians?
Finally after having lupus for 20 years and teaching grade 7/8 ( and 2 years of grades 5/6), for 8 years, I think my body has pooped out. I am in a flare which I'm pretty sure is attacking the central nervous system right now. I have been having mini strokes for about 5 months (about 8 in total).... A bad one while I was teaching math....
I have stage 3 kidney disease from when it first presented when I was 19 (am now 39). Also have anti phospholipid antibody (blood clot in lung 14 years ago.
Just wondering if there's any Canadian teachers out there... Specifically in Ontario??? Otherwise, just teachers who can commiserate with teaching with lupus and all our complications???
:) thanks !!!!
What job can I do when being a school counselor is just too hard to manage with LUPUS
I have been nervous about joining groups. Two years ago, I had a crisis and ended up spending a significant amount of time in a coma suffering from pneumonia, inflammation around my brain, heart and lungs. I went to a support group as my doctor recommended and the people were in constant states of grieving. They were either grieving the lost of a loved one to lupus, grieving the lost of life as they knew it because of lupus, grieving because they were knew to the diagnosis of lupus, etc... I fell into a depression. It took me a year to work up the strength and confidence to return back to work. I am a high school counselor, I have been for 20+ years. My life has changed now that I am a member of the 40 club, I find myself constantly worrying about retirement, not having a career, not having meaning...purpose. I have two sons that are school aged, one is just starting his school career! My husband is a whiz kid in his field and had perfect attendance all throughout school. I am the only "sick" person in their lives. My son's deal with my flares by spending more time with their dad and less time with me. I drive thirty minutes to work everyday beginning at 6:30am and I don't think I can continue to. I have missed several weeks of work due to flares and a crisis in February; thankfully I have FMLA coverage so that my time off is not grounds for a poor evaluation which leads to termination. I honestly do not know what to do. This is my only career I have ever had, outside of being a mother and a wife..what else? I need a purpose, fulfillment, income- my own income. We relocated to a warmer state in hopes of limiting the crisis, and that did help but the flares continue and the brain fog, vision, rash, pain in my legs, feet and elbows continue. I cannot do this another year but I am afraid to submit my resignation, I have never quit or failed at anything.
What job can I do with Lupus and all of the wonderful things it brings? I need to know, please anyone, someone....