Many questions unsure where to find answers...
I'd appreciate any tips, or advice, or even helpful stories, and just words of encouragement and support.
The short story is I am out of work due to my medical complications. We've gone through our savings and are now living paycheck on 1 income instead of two, and struggling. The Rhumatologist diagnosed me with Lupus and a secondary of Sjogrens. The meds haven't kicked in yet to get me out of this flair. So I feel a bit in between that rock and hard spot.
The longer story:
My last 2 jobs have let me go due to attendance, so I feel the more I continue working without the Lupus going into remission the worse my resume becomes, and all references are shot.
I was with a company for 5 years, until they let me go because my LOA paperwork was turned in by the doc 1 day late. I know for a fact they have let others slide on this, but at the time I was too sick to fight - I just didn't have the strength. When my flair stopped I took a manufacturing low wage job because it was low stress and stress causes flairs. I eventually had to go down to part time even at this job, until one day my hands stopped working. I kept my boss in the loop with making a doctor appt to figure things out (I was still undiagnosed during both of these firings) but she fired me over voicemail. Again being sick and terrified about my hands, I didn't fight. I couldn't do the work with non-functioning hands, so I understand her letting me go - it was just crappy to do it over voicemail. I had worked there a year and a half. So the last 7 years of my resume are worthless. (the previous employeer I was not fired from shipped our jobs overseas and closed up shop in the states, so also not a good reference.)
So if/when I can go back to work the odds are way stacked against me.
I'd like to go back to work, to feel productive, to have purpose, and simply to get out of my own house. My hands are functional again, but with stiffness and pain. The fatigue is manageable, but I have good and bad days. Some days it takes me 3 hours just to get dressed for lack of spoons. Some days I just don't get dressed. So how do I find a job that doesn't check references, pays a livable wage, and will let me call in sick on short notice (because I don't know I won't have energy in advance - sure would be nice to know in advance though.)?
I read on the ADA act that employeers are required to make reasonable accomodations for people with disabilities. Is that me? I haven't applied for any disability status, does one need to apply somewhere, or just by having the diagnosis is one entitled? How does someone unemployed find a job willing to make such concessions? Should this come up in the interview? It would be much easier for me to work from home, but wll I find are scams, or actual businesses that require you to already have expensive equipment to work for them, and I don't have the funds to put $500-$1000 into a PC and dedicated phone line. When I feel better and the meds get me stabalized I hope to look for something low-stess and part time, with the potential for full time and advancement. I'm concerned that working at such a minimum wage job will cause me more trouble than it's worth, what with my car not having a/c, living in the sunshine state, and my lupus meds lowering my immune system. It seems as if I'm begging another flair to come on as soon as I would be able to find this job one day.
Should I just apply for Social Security/Disability and get over my dreams of one day being normal enough to hold down a job? And seriously, I don't know when that day will come at the moment... Some days its just harder than others to stay positive. Currently I'm feeling a bit useless, and a drain on our finances.
So, I'm really not sure where to turn, or where to go next? Anyone have some advice or suggestions for me?