waiting on referrals
It is so refreshing to have a Dr. that actually listened to me, and heard! what I was saying.
She hasn't diagnosed me yet, since my "tests for RA and Lupus came back negative". But, I didn't actually get the results, so I don't know if that was my ANA or RF or what. Luckily my tests for multiple myeloma came back negative so she ruled that out.
So, she is setting up a referral for a rheumetologist, an endocrinologist, and a urologist. She also mentioned maybe a dermatologist if the bactrim didn't clear up my rash. Of course, I had to stop the bactrim when I had a reaction, so not sure if she is going to do that or not.
So now I just have to wait for my appointments and see who is going to diagnose me. lol Hopefully it won't take long. I think this new photo-sensitivity cinched it for her to send me to the rheumetologist. I just don't think she knew what to do next for the blood tests for it.
Hopefully it won't take long to get in!!
it is good to see you are getting to see the right people.
hopefully they will help you.
Glad you are being listened to but keep in mind there is no actu test for Lupus. There are indicators that lead them in that direction but no single test. Glad you are going to see a specialist though!
Rheumotologist appointment scheduled! But it's not until September!!!
I know there isn't a certain test for Lupus, but I think it's out of my PCP's league and she's sending me to someone who knows about it better.
Your PCP did the exact right thing! I just always try and clarify when people say that the test for Lupus came back negative/positive so that new people don't get confused.
Originally Posted by wendya432
It sounds like you have a great PCP! Sounds like he/she is on top of it!
I scheduled in April, and the appointment was originally September... Part of the reason for a new patient appt being so far out is the task of gathering all your medical files. My new rheumy had like a two inch thick file on me when he came in the room for my appt, and he had actually read at least some of it, and studied it, and based on my previous lab work done over the last few years, after a physical exam, said "it can only be sle"... Finally, after 20+ years of this that and the other diagnoses... Just be ready in case they call you for a cancellation, which is how I got in a few weeks ago... tic - Don't forget to write notes to take with you!
Originally Posted by wendya432
I hope that my Dr. is as well prepared, jmail! How nice to have a Dr. like that!
Finally have referrals to the urologist and endocrinologist as well. Thankfully urologist is on Tuesday since I had gone into the ER yesterday in awful pain. Turns out I have 12 kidney stones!!! Yikes!!! But, I didn't have any protein in my urine, which I did the last couple times at the Dr.
I also probably have vasculitis but they couldn't say for sure, but ruled out everything else.
Someday I'll get the hang of this and find out what I need to worry about and what I just need to roll with the punches with!
eta: Oh, and the ER doc said normally he'd put me on steroids but he didn't want to interfere with any test results the rheumy would do.