Very true. I am in pain every single day, but what I have done is learn to deal with it and just go through it without the meds. I am more of a putting my mind on something else kind of person to try to block how I feel, instead of relying on medication like my doctors would like me to. Back when I was on Pred I needed it because I had a lot of problems with swelling, and now its a lot less. It's not good on your stomach to take NSAIDS everyday anyway, which they also told me. I do talk about how I feel and what hurts a lot, but I try my best not to make it sound like I am complaining. I'll take the meds when I really need them, but otherwise I press on and choose to fight without as many meds as I can, but if I get sicker then of COURSE I'd get back on, you betcha.
Originally Posted by tgal
I spent 6 months on steroids early last year and tapered down to nothing by early September 2011. I haven't taken any steroids since then and haven't had any problems at all so far. There are some days where i get a little bit of stiffness or a random pain in a knee or finger but other than that have been pretty spot on. My tests all seem to be ok just lacking in vitamin D. Hopefully you can eventually get off them but everyone reacts to this in their own different way. good luck!