So Kc was in the hospital last week for a few days.... they didn't figure anything out really or help as usual. Then when she got home, the next day we had to go to the ER, then they ran tests on her and found nothing was wrong. And then on Thursday we had to run her to the ER again for the same reasons ( trouble breathing, chest hurting, nauseous, not able to stomach the pills.) but then she cam back and then on Saturday she was having the same problems only seemed a lot worse so we took her to the ER, they ran some test on her and couldn't find anything wrong. So Kc came back home that same night. And tonight... surprise!... she is back in the ER only its really bad now and she hasn't had an appetite for anything and hasn't wanted to talk. So her not wanting to eat or drink anything besides with her meds (a little), she is dehydrated which makes everything else worse she was already having. They are probably going to keep her tonight and the next day, and maybe the day after that. This has been a frustrating week. I feel like KC is in an extremely bad depression and at war with herself. I'm really worried about her. She has never opened up to anybody about what she is going through at all for a whole year since she was diagnosed. I am scared that all of these bottled up emotions are causing infinite stress and are weighing her down day after day. And there is also stress from having to take 40+ pills a day, Connie (step mom) and dad, restricted diet from potassium and sodium, not having a licence (so being trapped in the house all the time), stress from our step sister (long story... different topic) and so on. And at this point she hasn't accepted that she is sick yet. Neither have I, or anyone else I'm sure too. This seems to be declining and getting worse instead of better. Lupus is an awful disease! I want to take it from her so she could be healthy again. I miss when I barely knew what stress was, when i didn't have to worry about tomorrow. And most importantly, when KC wasn't sick... I wish that no one had lupus. I wish everyone was just miraculously was healed. I wanna pray every family going through what mine is going through, and for those who don't have a family to help them through difficult times.
What a beautiful sentiment and wishes for all of us who suffer with this disease. I am so sorry to hear about KC and how this is affecting her. It is unbelievable that the hospital kept sending her home!!
Depression is not unusual amongst people with this disease. The depression can be due to the loss of our health, mobility, and freedom. Depression can also be a symptom of the disease itself. Whatever the case, it is something that should not go untreated. It is difficult for the body to heal itself when the mind and spirit are wounded.
I am a huge advocate of getting help for our emotional well being as well as for our physical well being. As I mentioned, one cannot heal without the other. Perhaps you can ask her doctors about referring her to someone who can provide emotional support and care for her.
I am sure that your love and concern means a lot to her and I commend you for being so supportive and caring. KC is very lucky to have you. Sending you warm thoughts.
Peace and Blessings
Wow CJ, you sure have your hands full. You and KC are going through so much.
I'm really sorry that KC is so sick. It is a horrible disease and it's not fair that your sister has it. It's also not fair that you have to go through this. I wish my kids were as close and caring as you and your sister are.
Take care of yourself. I'll be thinking of you and KC.