Brain Fog and driving?
I am pretty new to this but the brain fog thing is pretty scary to me. Sometimes I draw a blank and forget where I am at. Can you get brain fog while you are
driving? If so, what kind of things happen? I think about that and wonder if I am in danger.
Tough question Baum. I worry about that, too, because I do have moments when I am suddenly not sure where I am or where I'm going. I try not to drive when I am feeling funky, but sometimes it can't be helped.
i only drive in emergencys because of brain fog.
my worst case was before i finished working. i was a truck driver.
i drove for 1 hour in the wrong direction, and had no recolition of the drive.
i have had a few near misses, and driven off of the side of the road a few times.
my mind just goes blank, and switches off.
my rhuemy calls it "brain pauses".
i have an appointment booked with a specialist to make sure it is only fog.
please be careful.
this is one of the main reasons i am on disability.
Thanks Steve.Bryce. This whole thing is so new to me and because I don't have a diagnosis yet I feel afraid a lot. Sometimes when I have a brain fog at work I end up in the back room crying. I wonder if I am going nuts or if my brain will just stop working someday. How can anyone with this continue to work up to their usual standards? I feel so lost and afraid right now. I just keep hoping that I will get some medicine to fix all this. I went to get into my car this morning and because my legs feel so heavy sometimes I didn't pull my leg up high enough and ended up missing the car and scratching my arm. I guess in time I will get use to it?
I have, quite often, encountered "brain fog" when driving: I've forgotten where I was going, I can't remember how to get home, streets suddenly do not look familiar, and I get completely turned around. For this reason, I purchased a GPS and I use it for everything. Most importantly, I always punch in "Home" because I have become forgetful when only 3 blocks from my house and made wrong turns. The GPS has literally saved me and taken away a lot of my trepidation about venturing out in my car.
For other issues with "Brain Fog", I keep detailed notes about what I am doing, what I need to do, and what I plan to do. I also put EVERYTHING in my phone calendar with reminders 1-2 days prior to the even and more reminders 3-4 hours prior to the even....because I forget so easily. Without the notes and calendar reminders, I would be completely lost and totally unreliable to anyone.
Your fears are shared by so many of us here, so please know that you are not alone. I'm not sure that there is any medication that will cure the brain fog. I will probably take a combination of many things (meds, journals, calendars, etc) to bring you to a point where you do not have so many fears regarding your brain fog.
I do wish you the very best and hope that you find some ways to help you in this issue. :-)
Peace and Blessings
Hang in there! I tend to be able to "judge" my bad brain fog days and just don't drive on those days. It's aggravating as snot but not much I can do about it. I did have a couple of scary moments where I'd be places and not know how I got there but in my case it turned out to be absence seizures which were occurring prior to my grand mal seizure. I'm with Saysusie ~ write everything down! I have sticky notes all over the house, and various small notebooks that I keep different things in. And yes, GPS is a beautiful thing; we got a Prius back in the spring and I love the "Home" option - it kind of takes the pressure off.
Talk to you soon,
I too only drive in emergencies. I have been lost and in tears many times so the answer from me is yes. Thankfully GPS helps me get home but usually by that time I am starting to panic so I freak out. I take myself to the grocery store which is just a few blocks away but that is all.
It may be different for me because I have CNS Lupus but I believe that everyone with Lupus needs to keep an eye on themselves when it comes to brainfog and getting behind the wheel.
Although it hasn't happened for quite some time now, I have in the past become lost on my way home from the grocery store or from doing other errands. I've known the area where I live since I was a kid, yet sometimes during a lupus flare, it all looks foreign to me. It's more than just being lost though. It's hard to explain, but it's like street signs don't make sense, and the street names are written in some other language. The first few times it happened, it really rattled me.
What I do now, is not drive anywhere when I have a flare. But sometimes even without a flare it happens, so I keep a list of family/friends phone numbers on a card in my wallet, and I keep a few quarters tucked in behind the card so I can use a payphone to call someone to help me. I don't have a cellphone because they don't work very well if at all up here. I stay put at the payphone until the person I called shows up, and I then follow them to my house. I have a GPS, but it doesn't make anymore sense to me than the street signs do when this happens.
I am so glad you said that, Rob!!! I didn't want to say that I don't understand the GPS! I also hate it when I call someone and they try to walk me through getting back home! I just don't understand!! I feel like such an idiot on those days. I know I am not but I always feel horrible
Originally Posted by rob
I know it's pretty scary when it happens. The worse brain fog that I did was start to drive on the wrong side of the road. Don't drive when your feeling really bad, because the sicker you are the worse it is. Do little things to keep reminding you, like I talk to myself of my driving instructions. I'll say okay turn right don't forget to turn right or when I get in my car I will mutter something like okay going home now. It drives my sister crazy when I do it, but my mom has finally realized I wasn't lost it was because of the brain fog. I'm seeing the other posts on their reminders try to find something that you can do every time you drive to remember that your comfortable.