I may be losing it...or maybe not!
Thanks...you seem to know everything about your illness and I feel like I am both blind and deaf when it comes to lupus. I have had some of the tests you mentioned. Positive ANA led to rheumy appt where he did a DS dna test and urinalysis. Both came back ok, so I am still keeping my fingers crossed. The rheumy did say that he was leaning in the direction of lupus because of everything in my medical history...some of these things go back to age 9. Could I have had this for that long - I am now 30. I had chronic bronchitis as a child and also suffered from 2 episodes of pericarditis, pleurisy, unexplained rashes, swelling to the point of not being able to bend my arms/legs, hundreds of kidney/UT infections over the years. I had both the measles and the chickenpox twice. I have had what docotrs were calling non-eruptive shingles, but rheumy thinks may be related to lupus somehow-neuropathy, maybe? I had a series of chest X-rays done about 2 years ago, and there were some questionable looking spots...the final conclusion was that it was calcified lymph nodes in my lung, but now they seem to have moved. I also have lumbar spondiosis and spondiliothesis-Sorry for the spelling-and was just diagnosed with scoliosis in my upper back. I can remember having a family doctor when I was little and he and my mom would sit and talk about my various illnesses and how perplexing they were. Since he retired, my "family doctor" has been whoever is on-call at whatever clinic has the most empty parking spaces. Now I can see that this is probably why all these doctors never put everything together...they didn't have all the pieces. I found a GP that I really liked and trusted. I had been seeing him for about 2 1/2 yrs when he decided to do the ANA test. Now I feel like I am starting all over with this rheumy and I am so scared that he's gonna say-"Quit whining, suck it up and be a big girl. Nothing is wrong with you. It's all in your head." Honestly, it wasn't until lupus was mentioned and I started doing a little research that I didn't wonder if maybe it WAS all in my head. I certainly wouldn't be relieved by a diagnosis of lupus, but maybe validated would be a better word. Does that even make sense. At least I would know that there was really a reason why I just can't get out of bed, why I don't have the energy to blow-dry my hair, why I feel like a little old woman half the time, why pitching softballs with my daughter for a couple of hours leaves me in the bed for 3 days...I'm rambling now, and beginning to feel sorry for myself so I'll close...Thanks again for the info and allowing me a place to rant!!! :wink: