I'm so sorry :(
If there's any consolation to it, it's that it's a disease you know (though that is also one of the hardest parts). You can share with her the things that work for you, go to the same doctors (which is wonderful if you've tried a lot already), and have a better understanding.
Like you said though, we have many things in common with our children...but that shouldn't be one of them. =(
Originally Posted by kim,l
I am so sorry mate to hear this but mine was inherited like you know just the same and have they said your daughter's seizures come from it as mine did, i've been having bladder problems which the Lupus started and i'm now taking tablets to stop it.
It's such an early age and it's terrible at 23 and even our younger member's as you've got no life once it starts but i do hope your rheumo can help your daughter inthe best ways possible.
My love goes out to you both Terry xxxxxxxx
I'm sorry to read this. We've all discussed how much our AI diseases seem to be hereditary, despite what the docs try to tell us.
It does help you to make more sense of the symptoms that Sarah has been having, though.
Take her by the hand and guide her through this, Mum. Who knows? It might draw the two of you closer together.
Hugs to both of you,
This is a very difficult thread for me .... however, I did want you to know how sorry I am to hear that your daughter has been diagnosed with Lupus. Please do not blame yourself for her having the disease. If family members are genetically predisposed to having some type of auto-immune disorder, and they are sharing some of the same stressors and/or aggravating factors (environment etc.), then I suppose that it is quite possible for family members to have the same disease.
You have been with us for quite some time, you've shared and gained a lot of knowledge that will be so helpful to your daughter as you help her through this. Also, I am sure you know that we are always here for both of you :-)
Peace and Blessings
thankyou all for kind comments sarah sees rheumi friday hopefully medication will start and she will feel better