New to this website and forum
Hi, I'm Franziska and I was diagnosed with SLE 17 years ago after a stillbirth of my daughter, due to HELLP syndrome. I was originally given less than a year to live but hey ho, I'm still here ;-)
Originally my inner organs were affected but I made good progress due to acupuncture and homeopathy in addition to immunosuppressive and cortisone and later steroids.
(Don't get me wrong, I'm all for alternative medicine, but I wouldn't see my homeopath if my leg was broken! Common sense still rules).
My lupus was at a standstill for 10 years but it broke out with a vengeance five years ago and ever since I've been plagued! Still, I found that positive thinking is the A and O of dealing with a chronic disease and I enjoy life to the full even though I regularly fall asleep in front of the TV at 8pm because I'm just so darn tired all the time ;-)
I think communication is very important, it's always good to get fears, worries and anxieties off your chest and share it with other people. Shared worries are halved worries.