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  1. I'm doing well. Did more blood work this week with those same needles..same arm..now I feel like I need a sling (lol). My arm feels worse than it looks. Otherwise, I am feeling much better. Thank You So Much.
    Have a wonderful weekend!
  2. View Conversation
    they use those butterfly needle things on me. i guess cuz its childrens hospital? idk. hhha but yeahh my arm is still really bruised. it looks soo bad!!
    how have you been feeling??
  3. aawww....I did blood work last week and my arm is still sore and bruised. They've changed their needles due to the costs and I swear that needle was at least 1/4 thick. So, they save money at the expense of the patients....whatever!!
    I did some research on phonetic paraphasia for you..I hope it answers some questions. I'm glad to hear that you are able to lower your Prednsione and that everything else seems OK. Thinking of You Always
  4. View Conversation
    yeah. it was today, with my rhematologist anyways. he is lowering my prednisone to 12.5 mg. from 15mg. and he said everything seems okay. he said that the MRI came back and showed there was some inflammation on my brain =\ but he said that the pictures weren't very like...helpful in figuring if this is whats causing my word mix up or what. so we have to schedule a follow up with my neurologist and we're gonna go from there.
    blah.
    and my arm is SO bruised from my bloodwork. it sucks...
  5. So, how did the appointment go...all better, as good as you get before ya got poked and probed? Spirit and heart feeling better? Squeeze till ya pop.

    I don't feel the Imuran has kicked in yet. I read 6-12 weeks. It has been 3, I think.

    Family came and left. It was fun, stressful with twin 16 year old. Ate, shopped, loafed, swam, laughed, had a few cocktails, watched DVDs..Step Brothers, Chuck and David. I didn't feel swell half the time so I shifted to autopilot. They beached it, aquarium, puttputt golf, theater and ate at Bubba Gump Shrimp House.

    They love my cooking skills, so I stuffed a 14 pound turkey, grilled jumbo shrimp in the shell, BBQ baby back ribs, Fresh Herb Pasta..oh, a Dark Chocolate Cheese Cake...Crepes with fresh pineapple sauce. For the rest of their meals...I said, fend for yourself..

    I was pooped...My husband flew out yesterday at 2PM...I slept for 12 hours last night...with a few quaking wakes. I could go for another round of shut eye..

    Muah..Loves...
  6. View Conversation
    thanks :]
    yeah they are pretty bad.but i manage i guess lol. its all i can do.
    i see my rheumatologist tomorrow so hopefully he'll have my results from my mri :]
  7. View Conversation
    we should get the results 2morrow morning...hopefully. i got another headache right now :[ so i kinda can't wait for these results. they said i might hahve some like...thing where it like inables your ability to speak correctly, i forget what its called...but its two words and they both start with P. i know one of the words is Paraphasia ...but i'll keep you updated.
  8. View Conversation
    i'm doing really well. how about yourself? i just had to get a brain MRI today tho blah. but other then that, i'm ayyyy-okay! i just actually got back from Punta Cana, Dominican Republic. the best time of my life!!! it was amazing on so many levels. i'll be posting up pictures
  9. Hi Carlotta, check your PM's when you get a chance.
  10. View Conversation
    GMN2121 i think the lady's name is...another singer n poet. I had to write this first before i forgot lol.
    How are you today? Hope you are feeling much better today.Love Amanda.xxxxxxx
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About Saysusie

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Date of Birth
October 21
About Saysusie
Biography:
Married for 30+ years. Professional Singer - Moderator/Administrator at WHL
Location:
Victorville, California
Interests:
Singing; swimming; walking; reading
Occupation:
Retired Law-Enforcement

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View Saysusie's Blog

Recent Entries

My thoughts for today

by Saysusie on 10-30-2014 at 01:00 PM
I was sitting, this morning, thinking and meditating. Trying to place myself in a calming, quiet, peaceful place. As I silently breathed in God's air and exhaled all stress, these thoughts came to me and I decided to share them with you. I am a firm believer in the power and the magic of "love". I believe that we are created from love, and therefore that love capacity resides in each and every one of us. When I meet and/or speak to someone, I determine to see, meet and speak to that

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Hello Family

by Saysusie on 02-15-2013 at 01:07 PM
I know many of you have been wondering about my absence, so I thought that I would pop in to write this blog to share with all of you. Right now, I am facing a challenge as I've been diagnosed with breast cancer. This diagnosis has been an upheaval in my life and a traumatic one for all of my family and friends. As you can imagine, I have not been able to function properly since the diagnosis. As such, I have not been here because I felt so useless and unable to provide much support, comfort,

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The holidays and stress

by Saysusie on 12-22-2011 at 05:31 AM
Hello WHL Family;
As we all know, stress is one of our biggest enemies and I know that, with the holidays upon us, many of us are feeling (and dealing with) additional stress. Wherever there is stress, we often find that there is also a bit of anger, some resentment, and often feelings of powerlessness.
I just want to remind everyone that the truth is: No one, but ourselves, has authority over how we feel. In all stressful situations, we have the choice of how we will react to them.

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It Never Gets Easier

by Saysusie on 10-03-2011 at 09:47 PM
Hello WHL Family; It is October, again. October 2011 marking 12 yrs since the loss of my sweet Lauri. I suspect that this October will be a rather difficult month for me because I have had so many health challenges heretofore and now the stress of having to acknowledge another birthday that my sweet daughter is not here to celebrate; well, it is not helping my physical health at all.
I know that my health deteriorates each and every year at this time and, intellectually, I have made that

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Faith Of The Heart!

by Saysusie on 01-13-2011 at 02:29 PM
Dear WHL Family;
It has been quite a while since I posted a Blog. However, I just wanted to share some of my thoughts about faith, love, and loss.
Each year, around the holiday season, I and my family fall into a dark abyss from October until January. These months represent our daughter's (Lauri's) birthday month..Thanksgiving without her, the anniversary of her passing (12/10), her wedding anniversary (12/13), and finally Christmas and New Year's without her.
No matter

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