• Saysusie's Avatar
    05-22-2017, 06:18 AM
    Thank you as well Shanna, may you continue to find comfort and support. Much love and I wish you peace and blessings. Saysusie
    2 replies | 58 view(s)
  • Saysusie's Avatar
    05-18-2017, 08:45 AM
    It is with a very heavy heart that I am reporting that I will be asking the Administrator to shut down WeHaveLupus! With the popularity of Social...
    2 replies | 58 view(s)
  • Saysusie's Avatar
    05-18-2017, 08:22 AM
    It is with a very heavy heart that I am reporting that I will be asking the Administrator to shut down WeHaveLupus! With the popularity of Social...
    0 replies | 41 view(s)
  • Saysusie's Avatar
    05-18-2017, 08:05 AM
    Saysusie replied to a thread I'm a grandmom!! in Lauri's Lounge
    Hi Sweetie!!! I've missed you too and also think of you often. Please let me know how you are and how life is treating you. This board has been...
    4 replies | 435 view(s)
  • Saysusie's Avatar
    05-14-2017, 07:03 AM
    Saysusie replied to a thread New job in Lauri's Lounge
    I'm glad that it is still working for you and that your co-workers are so awesome. I hope that the fatigue is manageable and that things continue to...
    6 replies | 464 view(s)
  • Saysusie's Avatar
    05-09-2017, 10:04 AM
    Saysusie replied to a thread New job in Lauri's Lounge
    Hey..just checking on you. Are you still managing well at your new job? I imagine that it has become routine now and easier for you to deal with. ...
    6 replies | 464 view(s)
  • Saysusie's Avatar
    05-09-2017, 10:02 AM
    I am so sorry that no one responded to you. I've been down for several weeks due to a really bad lupus flare up. Please accept my apologies. Do...
    2 replies | 188 view(s)
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Recent Entries

Really? Record Cold? AARGH!

by Upnorthsal on 01-25-2014 at 06:31 PM
So the weatherman is saying we are in for another week of record cold, and if you haven't already heard, there is a shortage of LP in the northeast. We have turned our thermostat down to 62 to try to conserve on the LP we have in our tank. For most of you, you know the dread I feel for the inevitable week of cold hands and feet and achy joints. Not a happy camper!
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I haven't got time for the pain...

by Upnorthsal on 01-16-2014 at 07:28 PM
This time of year is always hard on me. I seem to get flair-ups in the winter months. I'm not sure if it's the cold or the lack of sunshine, but it always happens. I read somewhere that I should journal my pain, keeping track so when I visit my rheumatologist I can share the information. So, I decided to start journaling in the mornings and write down how I felt each morning. That was an eye-opener! It was so depressing to read! Now, even though I have had lupus for over 20 years, I usually don't

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