I think I am finally starting to recover from the terrible flare I am in. Definitely not over it by far, but at least the heart issues are starting to improve, thanks to Prednisone. Dr. put me on antibiotics and prednisone again. Along with all the other meds I am taking. Chest x-ray was negative for pneumonia, so they are thinking it was fluid build up around lungs and heart. I was terrified by what I experienced. I actually considered the fact that I may die from this flare! This is the 2nd episode
As I come up on a year of horror, I am worse then I have ever been. Really getting scared with all the things going on in my body. My organs are all being affected by this. I am no closer to getting a diagnosis. I am going to get to see an Immunologist and hope that will get me somewhere. Rheumatology is doing nothing for me.
I have some Lung and Heart issue now. Kidneys are not good, but that is touch and go. I can't breathe, have pain in my chest, and my heart is really working hard. My
Today, I find myself struggling with a very bad flare. It is getting every inch of my body today. I have not slept much in 4 nights. This is wearing on me. I am trying to rest and take things easy, but it is hard for me. The pain today is enough to not want to increase the level to off the charts! I was encouraged by my husband to start writing the things I experience down. This way I can track how I am doing. I have found it difficult to find a doctor who will see what I am going through. My symptoms