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  • tgal's Avatar
    Today, 04:22 AM
    tgal replied to a thread Who thinks of me? in Lauri's Lounge
    Thanks everyone. Love you all
    8 replies | 118 view(s)
  • tgal's Avatar
    11-12-2014, 08:56 PM
    tgal replied to a thread Who thinks of me? in Lauri's Lounge
    You put it on my TL and mine is set so no one else can see it... Whewwww. I will say the words were so kind they made me cry. Love you Toni
    8 replies | 118 view(s)
  • tgal's Avatar
    11-12-2014, 08:46 PM
    tgal replied to a thread Who thinks of me? in Lauri's Lounge
    Nooooo! Nothing on FB! I keep a very different face there and I never whine. Thank you though. Love yoU
    8 replies | 118 view(s)
  • tgal's Avatar
    11-12-2014, 08:00 AM
    tgal replied to a thread Who thinks of me? in Lauri's Lounge
    I did the best I could do. I made them a home, a real home and I take good care of them but I can't clean did poop and pee up 9 and 10 times a day...
    8 replies | 118 view(s)
  • tgal's Avatar
    11-11-2014, 07:24 PM
    tgal started a thread Who thinks of me? in Lauri's Lounge
    Many of you may not now who I am but I am (or was, not sure of my status at the moment) a mod here. I am about to do what I have not done since...
    8 replies | 118 view(s)
  • ritzbit2's Avatar
    10-22-2014, 12:39 PM
    I haven't been on this website in over a year. I was talking with someone on facebook today about it and it made me want to visit :) I've had so much...
    4 replies | 324 view(s)
  • ritzbit2's Avatar
    10-22-2014, 12:26 PM
    Thanks you guys :) It's been a very long time since I've posted. I was literally talking to someone today about this website so I decided to see if I...
    4 replies | 283 view(s)
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6 Visitor Messages

  1. View Conversation
    hi i will upload pic and set profile
  2. View Conversation
    Hi pls bfreind me on Facebook if u want too Dana weinstein younger I'm more open on that site TTY soon
  3. View Conversation
    Yep, i get kinda deformed looking too, but not from my chest, i get a large "Igor" hump on my upper spine and my left shoulder will look very boney, swollen and way different then the other side, MRIs show a few discs herniaed but nothing that required surgery or made the drs feel it was anything that was a big deal. i finally gave up after going in so many times for it, nobody could seem to find anything, so ive just been living with it. i never put the it together with the chest symptoms, next time it acts up ill pay more attention..i always try to just pretty much ignor everthing lol!
  4. View Conversation
    You are right about doing nothing, that is the ONLY thing that helps me, lots of rest, that is hard for me, i work 12hour days, lol. I have gone in and been told maybe it was blood clots thank god it wasnt, costo, inflammation, rib out, hypermobile joints, ive done all kinds of heart tests, cat scans, xrays..ugg and no answers. Mine is aweful on the left side, sometimes it looks like my shoulder is distorted too, i dont know if its all swelled up or what, it goes down into my ribs, normally starts in the back below my left shoulder blade, then it can wrap around to the front at times, very sharp stabbing pains when i breathe, i am very tough, and ill tell ya, it can take me to my knees. sometimes it radiates to the right as well and sometimes i can feel it in my arms, but almost all the time its the left side.
  5. View Conversation
    It seems like i have had it forever! First i started going to a chiro who told me i have had ribs out, i finally couldnt take it anymore & went to my Primary dr, My dr sent me to Physical therapy for Costo & the Physical therapist was really cool &said yeah, you have hypermobiltiy & she felt it was from inflammation, so she said to see a rhuemy, went to one & he was a real jerk who didnt look or listen to me and i gave up at that point, ended up back in PT cause it hurts so bad, she told me to get a second opinion, so i did some googeling around & found a rheumy who spent time with me & has really helped me alot &gave me the lupus diagnosis, started me on plaquinel which has given me alot more energy, a prednisone pack which is helping with the rib thing and this week i started imuran, she said she felt that the whole rib thing is just deep deep inflammation. i hope she is right! glad to have someone else out there with it, now i know im not nutso!! lol sorry about the book!
  6. View Conversation
    Hello! I am new here too, and new to lupusdiagnosis , i was reading your post and you sound just like me with the whole rib thing! nice to know someone else with the same stuff going on, sometimes it feels like your loosing your mind with the strange things going on! Lol!! Just thought i would introduce my self and see if you have found anything that relieves the rib pain for you! it sure is miserable!
    Have a great day!!
Showing Visitor Messages 1 to 6 of 6
About tripLexie

Basic Information

Date of Birth
August 22, 1991 (23)
About tripLexie
Biography:
Born a Texan and raised in southern Florida. Recently diagnosed (2/22/2012) with an undifferentiated autoimmune disease pointing towards a Lupus/Systemic Sclerosis overlap. I live in west Texas and I'm slowly learning how to still enjoy my yonug life while combatting these stupid systemic illnesses.
Location:
Midland, TX
Occupation:
Accountant

Signature


"Rule number one is, don't sweat the small stuff. Rule number two is, it's all small stuff."
-Robert Eliot

Dx: Potential Lupus, Diffuse Systemic Sclerosis, Mixed Connective Tissue Disease

Rx: Prednisone 5mg 1x daily, Lyrica 75mg 2x daily, Omeprazole 200mg 1x daily, Xanax .5mg prn

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