Tab Content
No Recent Activity

3 Visitor Messages

  1. View Conversation
    Every single person I know knows I have lupus and I think not being closed about it has really helped because I dont feel like I have to keep coming up with explanations or anything. It usually comes up because of my fingers (Raynauds) or when I have to tell them to take the elevator if we're walking together. People are much more accepting and knowledgable about it than you would think! I tell complete strangers at work and you would be suprised how many people will say oh I have a cousin/friend/aunt/coworker/other long lost relative who has lupus too. I typically go out late once a month if that and I don't really stay up late most of the time. Im usually in bed and asleep before 11 at the latest lol that could just be because Im boring though.
  2. View Conversation
    When it comes to balance thats still something Im trying to work out. With school and work I've told all my profs and my bosses and so I am allowed more absences in classes and at work I can only work 4-5 hour shifts which is much easier on my body. I try to get alot of down time between work and school. Weekends are my bf/friend time after work and by that time I usually don't do anything more than watching movies because Im either too tired or Im afraid I'll make my feet act up. As bad as it sounds the first thing I cut is classes I know Im doing alright in. I figure sleeping in one day and missing one class will be better in the long run than going and driving half sleep and then wearing myself out more by walking around campus all day when I already dont feel good. I always rest when I need to.
  3. View Conversation
    welcome whl hope to have many chats with you take care
Showing Visitor Messages 1 to 3 of 3
About Nihao1.

Basic Information

Date of Birth
May 13
About Nihao1.
I am 20. I was diagnosed with SLE and lupus nephritis at 19. I also deal with migraines /lupus headaches, possible fibromyalgia, chronic anemia and depression. I was treated for TTP/Atypical HUS when I was diagnosed with Lupus as well. I am seeking help with dealing with the pain, fear and emotional turmoil that lupus causes. I am looking forward to connecting with others who "get it".
Reading, Gardening, Eating(vegetarian or vegan), Cooking, Traveling, Swimming, Biking
College Student-Chinese Language and Culture Major


Total Posts
Total Posts
Posts Per Day
Visitor Messages
Total Messages
Most Recent Message
12-09-2011 07:25 PM
Total Thanks
Total Thanks
  • Thanked 1 Time in 1 Post
General Information
Last Activity
02-24-2012 09:27 AM
Join Date