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24 Visitor Messages

  1. Hi Yolanda,

    I wanted to let you know that I read your post about what the outlook is with Lupus. I've been living with Lupus for nearly 8 years now, and I have a few bits of advice that might help you.

    But right now, I've been up for too long and I need some shuteye. I'll share some ideas that might help you after I get some rest. Have hope, there are ways to live with Lupus and also have a great life despite it.

  2. I have been struggling with it emotionally lately, or at least. Believe this is part f being so sad lately, I am NLT too sure why though as I have previously, at least. Thought, been accepting of the disease. Anyway come t this sight by recommendation of my sister and hoping for some support and sharing of experiences, coping strategies or and ideas to help or prevent anything I don't want that is related to Lupus. Thank you very much!

    Perth, Western Australia, Australia
  3. I was here for four nights and on very high doses of prenisone. Long story short my Lupus has slowly been brought under control however as it has only just been a year since my diagnosis I am still getting used to it, the symptoms, and flares etc. For example I haven't really had joint pain since my initial flare up however today is really bad, I have noticed a few Of the symptoms occurring very recently that occurred the same time last year and am wondering if the disease is almost cyclical. I am worried it will follow the same path as last year and I would prefer to stop it before it damaged my kidney again and I have to go back to high dose if prednisone etc however if I can withstand the pain no doctors etc seem to think it is anything too serious but I just have a feeling it will flare again soon and would prefer to catch it before it does.
  4. Hi Guys,

    My name is Yolanda Schuurmans. Last year in 2010 on August 19th I was diagnosed with SLE after previously being diagnosed with Sjogrens two years before. I remember my pain be can in my hips and slowly the joint pain spread the rest of my body. Only now that I have read other stokers I also realize I had earlier symptoms hinting to the disease such as mouth ulcers, however at the time never released this was the beginning of my Lupus journey. After a few daily hospital visits over a few weeks I was finally admitted to hospital (Sir Charles Gardiner) when my liver became involved.
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About YollyDolly

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About YollyDolly
My name is Yolanda Schuurmans. I am 18, a triplet and also have 2 older sisters and 3 older brothers. I live in Perth, Western Australia, Australia. I currently work as an outside clerk at a law firm and am hoping to go to Uiversity and study next year.
Perth Western Australia
Acting, Law, Studying, Socialising, Babysitting
Outside Clerk


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