• Desleywr's Avatar
    08-24-2016, 02:24 PM
    Desleywr replied to a thread Bells Palsy in Lauri's Lounge
    Thank you so much for your concern! Got MRI results and not any changes from last which is great! The Bell's palsy had got more severe so spoke...
    28 replies | 5137 view(s)
  • Desleywr's Avatar
    08-22-2016, 04:27 AM
    Desleywr replied to a thread Bells Palsy in Lauri's Lounge
    MRI results not back yet but hospital called me in and had 1.5 hr Neuro exam which for one they noted that my left foot has no response when stick is...
    28 replies | 5137 view(s)
  • Desleywr's Avatar
    08-21-2016, 02:20 PM
    Desleywr replied to a thread Bells Palsy in Lauri's Lounge
    I had the MRI of brain and spine on Saturday and it was supposed to take 30 min in machine but they did it for 50 min I was glad to get out. Can't...
    28 replies | 5137 view(s)
  • Desleywr's Avatar
    08-19-2016, 11:10 PM
    Desleywr replied to a thread Bells Palsy in Lauri's Lounge
    Off getting MRI now in ten min
    28 replies | 5137 view(s)
  • Desleywr's Avatar
    08-15-2016, 03:31 AM
    Desleywr replied to a thread Bells Palsy in Lauri's Lounge
    Thanks. Today now left eye twitching. Can't swollow nose also paralysed on left side. Now wearing an eye patch which helps and stops the stinging.
    28 replies | 5137 view(s)
  • Desleywr's Avatar
    08-13-2016, 07:30 PM
    Desleywr replied to a thread Bells Palsy in Lauri's Lounge
    I spent yesterday in ed and have an eye that won't shut full use of my forehead mouth that won't work on the same side left. Pain in left side of...
    28 replies | 5137 view(s)
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24 Visitor Messages

  1. Hi Yolanda,

    I wanted to let you know that I read your post about what the outlook is with Lupus. I've been living with Lupus for nearly 8 years now, and I have a few bits of advice that might help you.

    But right now, I've been up for too long and I need some shuteye. I'll share some ideas that might help you after I get some rest. Have hope, there are ways to live with Lupus and also have a great life despite it.

    Rob
  2. I have been struggling with it emotionally lately, or at least. Believe this is part f being so sad lately, I am NLT too sure why though as I have previously, at least. Thought, been accepting of the disease. Anyway come t this sight by recommendation of my sister and hoping for some support and sharing of experiences, coping strategies or and ideas to help or prevent anything I don't want that is related to Lupus. Thank you very much!

    Yolanda
    Perth, Western Australia, Australia
  3. I was here for four nights and on very high doses of prenisone. Long story short my Lupus has slowly been brought under control however as it has only just been a year since my diagnosis I am still getting used to it, the symptoms, and flares etc. For example I haven't really had joint pain since my initial flare up however today is really bad, I have noticed a few Of the symptoms occurring very recently that occurred the same time last year and am wondering if the disease is almost cyclical. I am worried it will follow the same path as last year and I would prefer to stop it before it damaged my kidney again and I have to go back to high dose if prednisone etc however if I can withstand the pain no doctors etc seem to think it is anything too serious but I just have a feeling it will flare again soon and would prefer to catch it before it does.
  4. Hi Guys,

    My name is Yolanda Schuurmans. Last year in 2010 on August 19th I was diagnosed with SLE after previously being diagnosed with Sjogrens two years before. I remember my pain be can in my hips and slowly the joint pain spread the rest of my body. Only now that I have read other stokers I also realize I had earlier symptoms hinting to the disease such as mouth ulcers, however at the time never released this was the beginning of my Lupus journey. After a few daily hospital visits over a few weeks I was finally admitted to hospital (Sir Charles Gardiner) when my liver became involved.
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About YollyDolly

Basic Information

About YollyDolly
Biography:
My name is Yolanda Schuurmans. I am 18, a triplet and also have 2 older sisters and 3 older brothers. I live in Perth, Western Australia, Australia. I currently work as an outside clerk at a law firm and am hoping to go to Uiversity and study next year.
Location:
Perth Western Australia
Interests:
Acting, Law, Studying, Socialising, Babysitting
Occupation:
Outside Clerk

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