• tgal's Avatar
    Yesterday, 04:22 AM
    tgal replied to a thread Who thinks of me? in Lauri's Lounge
    Thanks everyone. Love you all
    8 replies | 123 view(s)
  • tgal's Avatar
    11-12-2014, 08:56 PM
    tgal replied to a thread Who thinks of me? in Lauri's Lounge
    You put it on my TL and mine is set so no one else can see it... Whewwww. I will say the words were so kind they made me cry. Love you Toni
    8 replies | 123 view(s)
  • tgal's Avatar
    11-12-2014, 08:46 PM
    tgal replied to a thread Who thinks of me? in Lauri's Lounge
    Nooooo! Nothing on FB! I keep a very different face there and I never whine. Thank you though. Love yoU
    8 replies | 123 view(s)
  • tgal's Avatar
    11-12-2014, 08:00 AM
    tgal replied to a thread Who thinks of me? in Lauri's Lounge
    I did the best I could do. I made them a home, a real home and I take good care of them but I can't clean did poop and pee up 9 and 10 times a day...
    8 replies | 123 view(s)
  • hating_that_pred's Avatar
    11-12-2014, 02:12 AM
    Not really lupus related here, but i'm struggling and wondering if anyone is or has been in a similar boat. So I suffer badly from a dissociation...
    2 replies | 61 view(s)
  • tgal's Avatar
    11-11-2014, 07:24 PM
    tgal started a thread Who thinks of me? in Lauri's Lounge
    Many of you may not now who I am but I am (or was, not sure of my status at the moment) a mod here. I am about to do what I have not done since...
    8 replies | 123 view(s)
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24 Visitor Messages

  1. Hi Yolanda,

    I wanted to let you know that I read your post about what the outlook is with Lupus. I've been living with Lupus for nearly 8 years now, and I have a few bits of advice that might help you.

    But right now, I've been up for too long and I need some shuteye. I'll share some ideas that might help you after I get some rest. Have hope, there are ways to live with Lupus and also have a great life despite it.

    Rob
  2. I have been struggling with it emotionally lately, or at least. Believe this is part f being so sad lately, I am NLT too sure why though as I have previously, at least. Thought, been accepting of the disease. Anyway come t this sight by recommendation of my sister and hoping for some support and sharing of experiences, coping strategies or and ideas to help or prevent anything I don't want that is related to Lupus. Thank you very much!

    Yolanda
    Perth, Western Australia, Australia
  3. I was here for four nights and on very high doses of prenisone. Long story short my Lupus has slowly been brought under control however as it has only just been a year since my diagnosis I am still getting used to it, the symptoms, and flares etc. For example I haven't really had joint pain since my initial flare up however today is really bad, I have noticed a few Of the symptoms occurring very recently that occurred the same time last year and am wondering if the disease is almost cyclical. I am worried it will follow the same path as last year and I would prefer to stop it before it damaged my kidney again and I have to go back to high dose if prednisone etc however if I can withstand the pain no doctors etc seem to think it is anything too serious but I just have a feeling it will flare again soon and would prefer to catch it before it does.
  4. Hi Guys,

    My name is Yolanda Schuurmans. Last year in 2010 on August 19th I was diagnosed with SLE after previously being diagnosed with Sjogrens two years before. I remember my pain be can in my hips and slowly the joint pain spread the rest of my body. Only now that I have read other stokers I also realize I had earlier symptoms hinting to the disease such as mouth ulcers, however at the time never released this was the beginning of my Lupus journey. After a few daily hospital visits over a few weeks I was finally admitted to hospital (Sir Charles Gardiner) when my liver became involved.
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About YollyDolly

Basic Information

About YollyDolly
Biography:
My name is Yolanda Schuurmans. I am 18, a triplet and also have 2 older sisters and 3 older brothers. I live in Perth, Western Australia, Australia. I currently work as an outside clerk at a law firm and am hoping to go to Uiversity and study next year.
Location:
Perth Western Australia
Interests:
Acting, Law, Studying, Socialising, Babysitting
Occupation:
Outside Clerk

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