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  • tgal's Avatar
    04-06-2014, 01:20 PM
    First let me say welcome to the WHL family! We are glad you found us! Next I have to say that those last two post are exactly the kind that brought...
    3 replies | 68 view(s)
  • tgal's Avatar
    04-05-2014, 01:20 PM
    Hello and welcome to WHL! We are so very glad that you found us. I am so sorry you are having a hard time but sadly it often takes us a long time to...
    2 replies | 44 view(s)
  • tgal's Avatar
    03-23-2014, 06:56 PM
    Hi Alopez. I wish I could answer that question for you but it isn't that simple. There currently is no single test for Lupus. That blood work will...
    2 replies | 90 view(s)
  • tgal's Avatar
    03-22-2014, 04:59 PM
    tgal replied to a thread Tapering and anxiety? in Lauri's Lounge
    The answer is yes and no. Yes if it is acting up at the moment but often times the problem is that it is a problem of irregularity in how it is...
    4 replies | 82 view(s)
  • tgal's Avatar
    03-22-2014, 04:44 PM
    Wonderful advice we try to give often! Don't ever let someone ignore yoy when you know you are sick! So glad you listened to your body! Take care of...
    2 replies | 96 view(s)
  • tgal's Avatar
    03-22-2014, 07:11 AM
    Sorry i am so late in welcoming you! We are really glad that you are here. Make yourself at home and I look forward to getting to know you!
    8 replies | 183 view(s)
  • tgal's Avatar
    03-22-2014, 07:02 AM
    Hello from a fellow Texan! I love the "don't make Marvin mad"! LOL Very true! Texas is hard on Lupus, some parts worse than others. I am glad you...
    5 replies | 127 view(s)
  • tgal's Avatar
    03-22-2014, 06:58 AM
    When you say "get sick" do you get diarrhea? I ask because I know many suffer with this and often it is caused by the removal of the gallbladder. It...
    7 replies | 154 view(s)
  • tgal's Avatar
    03-22-2014, 06:49 AM
    tgal replied to a thread Tapering and anxiety? in Lauri's Lounge
    I'm going to give you an answer you most likely don't want to hear. Talk to your doctor. I dealt with this for several years before they figured out...
    4 replies | 82 view(s)
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35 Visitor Messages

  1. View Conversation
    Hey Love!
    how have you been?
  2. View Conversation
    i have you listed as my friend - because you are special.

    merry christmas and thank you for being part of my life.
  3. View Conversation
    your not horrible......
    just busy.

    enjoy the festive season.
    and merry christmas.
  4. View Conversation
    just popping in to say hi

    hi
  5. View Conversation
    LOL Ohhh No Royal Highness here!!! Me too on the purple thing. It has always been my favorite. Often times I will toss in some pink as well
  6. View Conversation
    Hello to my purple friend! These are my favorite colors!

    About reading and not being able to post... I COMPLETELY understand that. Sometime my fatigue is so bad or my brain is so foggy that the most I can mustier is reading and clicking the "thanks" button. I just wanted you to know that you were being thought about. Good luck on the appointment tomorrow, I will keep my fingers crossed
  7. View Conversation
    Elo my friend! Where have you been? I have missed seeing you around! stop by and say hi sometime!
  8. View Conversation
    Lol I talk alot too its all good. Its like no one including him had to go through so much stuff at 18. I bet Im handling it alot better than they would even at their age. They act like I just need to grow up. Its not a matter of growing up. I'd like to tell my mom at 40 to just grow up. My boyfriend is usually pretty understanding, though he always has his moments. We've been together since about 6 months after I was diagnosed, and we've been friends for much longer. He's been driving me insane alot lately about a lot of things. I hope that we get through it. I cant handle us fighting like this right at the beginning of college.
  9. View Conversation
    I've been sleeping just because my head hurts. For once Im not actually fatigued or anything Im just trying to sleep off headaches. I havent really told anyone but my bf that I've been feeling like crap and he's just being very stupid about everything lately. He knows I went off my pills and cant understand it and wants to blame me for being sick right now and tell me that other people have it worse off. Thats usually when I blow up at people. I dont need to be compared to a cancer patient, we both suffer in different ways. You cant compare apples to oranges. URG. I am looking forward to school next week for the sole fact that I can ignore everyone while Im in class and such.
  10. View Conversation
    I "spend all his money" even though I never spend his money. Gas is just expensive. He doesnt even get me food half the time when we hang out anymore. I dont have a job. I cant pay for things. Not eating makes my headaches worse.
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About Elo

Basic Information

About Elo
Biography:
Hi there, I’m Elo! (No relation to the band E.L.O.) My full name is actually longer, but I go by Elo (rhymes with mellow and Jello), because it's much easier to pronounce and spell. Plus I like it.

I'm a dork. I love goofy humor, drawing, reading, baking (Caution: Does NOT mean I am good at it by any means), this forum, music, singing, and dorky MMO's (Though I’m not on any currently).

I value quiet, I think when you're really comfortable with a person, there are times when there's no need to speak.

I’m much more outgoing online than in person.

I babble when I'm nervous, the smallest things mean the most to me, and i'm quite possibly obsessed with cupcakes.

I got sick in November, 2010, and saw about 4 doctors and had multiple tests taken before being blandly diagnosed with an autoimmune disease / low level connective tissue disorder. Still awaiting a more specific diagnosis, of possible Lupus, MCTD, Sarcoidosis, Fibromyalgia, or a concoction of the few.

Due to minimal funds, and being caught with my pants down without insurance, I still haven’t been properly diagnosed. I’m hoping to remedy that soon – though it may take a while to even get to a specialist. One step at a time though, eh?

In the mean time, I’m just hanging out, bugging the forum goers, and taking it day by day. I’m unemployed – too sick to work, and living with my completely healthy (Thank Gad!) boyfriend, who is currently attending College.

That’s about all there is to it! You can follow me on twitter (yes, I caved and joined because of the Spoonie community) @ai_elo

Thassabout it!
Oh! My Avatar (since so many have asked about it) is an angel, with one black wing, and one white.
Location:
Indiana, USA
Interests:
Baking, Reading, Music, Walking, Animals, Anime, Drawing
Occupation:
Entertaining myself - and sometimes those around me.

Signature


One day at a time, one breath at a time... We can get through this.

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07-26-2012 11:08 AM
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06-30-2011
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View Elo's Blog

Recent Entries

Sometimes I think my Librarians know me better than my friends. and walking with cane

by Elo on 08-11-2011 at 05:14 PM
Sometimes I wonder if I'll ever get over being embarrassed while walking with a cane. I know I need to get over myself, but it's just, so... almost mortifying, really. Being seen at such a vulnerable point, when i'm in enough pain and sick enough that i have to use one. I just got back from the library and small grocery, and im still slightly nervous, even though i'm home safe now, away from the public's watchful eye. Today at the library, a man sitting in a chair next to the section i was looking

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