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  1. View Conversation
    Sorry im just answering you but my life has been crazy and trying to cope with everything. To answer your question im not sure if the benlysta is working or not at first i thought it was making me worst (lots of headaches, lots of body pain, just feeling like crap) had to increase my steroid useage and now i dropped it down to 10mg per day but i think i need to go back up ,im in pain as i type this, i already took 2 flexeril and 2 dilaudid and still in pain couldnt get my 4th dose of benlysta due to an infection. just had bloodwork as long as that is clear i can schedule my next treatment.how have u been ,lots of hugs n well wishes. slim
  2. Hi Steve, thanks! What brought that on?

    How are you doing? I am having a wonderful time getting all my gear ready to go to the mountains. The trail I am going on is filled with water falls. I am leaving Thursday. Night and coming back Sunday night! I did get a nice knife(giggle) with a nonslip rubber handle.

    How is everyone in your family doing? Is your step daughter healing well?
  3. View Conversation
    morning
    hope you have a nice day.
  4. View Conversation
    Edited for content.Conversation is moved to PM
  5. Hey Tammy, how's everything going in your world today? Karen took the day off, and we slept in until 1:30 this afternooon. Had a pizza, and some of her homemade sun tea. Such decadence! Things are back on track with the website, and overall, it's been a good couple of days. Hope the past few days have been good for you too.

    Rob
  6. Good luck on your day in the wilderness. Have fun!
  7. Hi Tammy,

    How are you today? I haven't been getting much sleep lately. Got lots of joint pain, and the NSAIDS I take for that give me a stomach ache. If it isn't one thing, it's another I suppose.

    I hope you are having a good day.

    Rob
  8. View Conversation
    I did realize she was pregnant. I am sure you told me but brain fog gets in the way sometimes. I was in the hospital twice when I was pregnant with my daughter. I was getting so dehydrated that she was losing the fluid around her. My potassium was way down and they couldn't get it to stay up. Finally my daughters pediatrician came in and told them to add magnesium to the potassium and it fixed everything. I hope that a doctor finds comes in with something as easy for your daughter!

    I know it is a stressful time but please make sure to take care of yourself. You will be no help to anyone if not
  9. View Conversation
    Do they know what is causing it? I just hate that this is happening to her. If it isn't one thing it is another!

    Thank GOODNESS your boss is understanding about this. We have to take care of our kids. It is in the mother's rule book
  10. View Conversation
    The problem is that none of the medicines are fixing it. He has what is called resistant hypertension which basically means that they can't really get it under control. They have his average BP down to 180/117 or so and with any exercise or irritation it goes well into the 200's again. I know him well enough to know he will most likely not take them if he thinks they are not doing what they should. It is just a mess.

    How is your daughter today? Is she able to keep food down yet?
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About lovedbyHim

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About lovedbyHim
Biography:
I am divorced and a mother of 4 adult children and 3 beautiful grandkids. I have a deep faith and do prison ministry. I love life and try to live it to the fullest in spite of my circumstances.I have SLE, Fibromyalgia, Hoshimotos, & Raynauds.
Location:
Pennsylvania, USA
Interests:
read, gardening, animals, hiking,
Occupation:
mental health

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