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    Hi sorry about the very late reply...i havent been on here for awhile!
    Thanks for checking up on me i got in to see a Rheumy early and turns out i was misdiagnosed, i have Lupus's "Cousin" which is like Lupus but not as bad....its called "Disconnective tissue disorder" but i am glad i was misdiagnosed because before all of this i had never heard of Lupus and now i am aware How are you doing?
  2. Hey there Sharpie, how's everything going in your world today?
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    I know why don't we come with spare parts. Oh darn my immune system seems to be broken I'll just go get a replacement for that. Oh in a perfect
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    Thank you! We called to make an appointment with my rheum this morning and she's out for a family emergency and they don't know when she'll be back =( Hoping they'll make me an appointment with another rheum at Childrens but its hard because I feel like the only reason Im still there is because my rheum does adult rheumatology too. I hope this other nice woman there will let me come see her. All of my joints have swollen up really bad over the course of the past week. I've missed school the past 2 days because I'm afraid of what will happen if I'm on them all day walking around campus. This is really not a good time for me to be sick. I start my new job this week which will require me to be on my feet for 4-5 hours at a time. I want my money back on this body =( its so defective.
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    You are so sweet! I need to add more pics. I am lucky, just like your mom is, I have a great daughter
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    Awe thank you, now my town doesn't seem so small compared to yours now. lol
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    If you are around we are chatting
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    Hello there! I just wanted to stop in and let you know that you are missed. I hope things are going well for you and that you are not here because like is going so well! Never forget that we are here for us if you need us
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    You are just soooo sweet! I am pretty crazy about you too! I am so proud to be part of this wonderful place. I even changed my signature to show that! Thanks for being so wonderful!!!
  10. View Conversation
    LOL@goatee! I have one of those too! I am on 40mg of pred a day and I have had 6 of the high powered injections in the last 4 months (1 every three months is supposed to be the max). I know what you mean about getting irritated. I am not ever sure what I am irritated at! Is it because I look like this michelin man or is because people are simply stupid? LOL Thank goodness in the forum I have a backspace button that I USUALLY am smart enough to use
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About sharpiessave

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About sharpiessave
I'm gunna use this space to say what I wanna do, instead of what I've done. Cuz this medical discovery/situation has changed my body and mind, so I'm going to roll with it and let my life change too.

I wanna be here for all the weirdness anyone has. Normal stuff too, of course. But I specialize in strangeness. : )

So, bring it on, folks. Show me your crazy, and I'll gladly show you mine!
Kansas City Area
Sharpie-ing anything I can get my hands on, Netflix!!!!!
Official Questioner of Everything


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