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    hi mary and welcome home.

    i understand the hard road you have been on.
    i am glad you are getting respite care now.

    i have had a few issues with my brain.. it pauses.
    i do not faint, or have seizures, but i do not stay alert during these times.
    i cannot even remember having them.
    the only way i know they are happenning is when others tell me.

    my scariest two events were:
    i had a pause whilst using a chainsaw. to cut fire wood.
    i came out of a pause to feel my jeans leg being pulled.
    i looked down to see a three inch cut in my jeans, but not in me.

    my second episode was using a lawn mower.
    i was wearing boots, and run over my toes.
    luckily i still have them all, but i am missing bone in 1 toe.
    this is still healing.

    otherwise i am doing fine, i still have good and bad days.
    it is summer in australia, so i hybinate a lot.

    if you go to my profile, then click on the link, "find latest started threads", you can read about my miss adventures.

    again welcome home, dear friend.
  2. View Conversation
    Hello Mary,
    My hubby as a rover 75 and they do shows besides doing jobs on one another's motor's but my hubby does his own and it started on friday and a pub lets them have a large piece of ground for rent because alot of them camp there and it was backwards and forth for 3 days and i told him lastnight never again.
    I've woke this morning with my face half paralised off the sjogrens besides the heat at times being to much i spent most of the time under a tent with the heat.

    I hope your keeping well besides and if not moan to me mate as i well understand the worry you have.

    All my love to you Terry xxxxxxxxx
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    Hi Mary,

    I've just told my hubby and he's disgusted with it and he said this is all down to them and i agreed with him....i know it's alot ontop of your head but try and keep records of this lot because if they do any harm to Alan, then you have full grounds for action mate through neglect.

    Love Terry xxx
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    Hi Mary,

    Please let me know how things go in the thread tomorrow, as i'm off to bed done in with this heat and tomorrow is going to be 90.

    Love you loads Terry xxxxxxxxx
  5. View Conversation
    How are you feeling today?
  6. View Conversation
    Mary I just wrote you a message on your post. Keep up with the research, your husband will appreaciate it
  7. Hi Guys
    Hoping you can help me or rather my partner as explained in my 1st post my partner Alan was only diagnosed in April 2011 and is finding it really hard to come to terms with this news he's admitted himself that he's in denial i keep telling him to come on here and read your members pests/blogs etc and try to educate himself but he refuses he says he can't face it right now.The biggest fear he has is what his life expectancy is with his diagnosis of Lupus nephritis sle stage 4 if anyone can advise me id very much appreciate it ive told him that some of the research i have done has shown people who have been fighting this disease for more than 10yrs but he seems convinced he's going to die soon so im hoping someone can reply to me and give him some reassurance that its not all doom and gloom and he can still live a reasonable good life.
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About MaryS42

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About MaryS42
My Partner has just been diagnosed with Lupus Nephritis SLE stage 4 on 13/4/2011
Cumbernauld Scotland
full-time carer to partner


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