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    Yes, I see why they are doing it. I am not feeling very well tonight but I will PM you tomorrow so we can talk a bit more.
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    Hi Liz,

    I do have CNS involvement with my Lupus and yes, I have those areas of white matter although those can be from many things. Mine were found while looking for answers to questions such as "why am I having seizures" and " what is causing the electric type pain that I get in my body" to name just a few. What caused your doctor to start searching CNS Lupus? Did it just come up because of the white matter found in an MRI? If that is the case try not to worry because, as I said, those can be there for many reasons and they can come and go
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    Hello Liz,
    Hows today been mate and i hope you've managed to rest in between packing and have'nt worn yourself out.

    Thinking of you mate in your stressful heat. xxxx
  4. Its going be a busy time in the coming weeks. Like I said in my post we are moving to Colby KS. Trying to found other people near by is tough. I am glad I still have my Lupie family. The one time I found a doctor that really care's I am given him up. I just hope when I meet this new one I don't have to go though ropes. I just want to keep you all updated
  5. I have a headache, very tried but its better then most days ;-) How are you feeling today?

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    Hi Liz,

    How you feeling in your body now mate and i really hope tomorrow is a better day for you all round.

    ~Hugs & Kisses~ Terry xxxx
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About lizbond36

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About lizbond36
I am a 32 year old woman, dealing with Lupus. My health hasn't been the best for over 7 years. But finally I am on the right road. I am marry to my best friend Dustin of 11 years. We have three kids Alia 14, Shelby 10 and our son CeJay he is 8 years old.
Kearney Nebraska
I enjoy cooking, watching hockey, playing with my kids


Diagnosed with SLE Lupus May 2nd 2011. I am taken Plaquenil, Pain Killers, muscle relaxers.


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