My 18 yr old daughter has a butterfly rash and after a sample was taken by a dermatologist the result was positive for lupus discoid. Further tests were all negative except for the antiDNA test, 5.1 and a urine test which had e coli in it.
The dermatologist suggested that my daughter does not have SLE, wants to see her in 3 months, but doesn't think she needs to see another doctor.
Over the last year she has had many infections (kidney, uti) and was hospitalised in the middle of the year. There was protein in her urine for many months even after continued treatment with antibiotics. She is often tired but doesn't complain of aching joints. After reading about lupus I wonder if any of her past illnesses have been related to lupus. Her eyes at the moment are red, sore and dry, even after using drops. They have been like this for some time. She had fainting spells, but tests showed no abnormalities.
Can you tell me what the high anti-DNA actually indicates? Am I worrying unnecessarily