Yesterday, 09:23 PM
if you are looking for reliable "fodmap" details.
go to the website for monash university in Australia ......
they are credited as discovering...
5 replies | 56 view(s)
01-23-2015, 09:59 AM
Does anyone else suffer from having muscle spasms in the bottom portion of your legs and your heart? If so what causes it? If I take a muscle relaxer...
0 replies | 40 view(s)
01-21-2015, 03:07 AM
I have found natural sugars to be harder to stop taking.
the quality of sugar they supply is quite strong, so please be careful how much you take.
5 replies | 56 view(s)
01-21-2015, 03:04 AM
I can only presume she has no knowledge of lupus ....
so she will not treat what she has no understanding of.
if it was me .....
4 replies | 36 view(s)
01-21-2015, 02:51 AM
hi allie, and welcome.
there are a few of us "aussies" on here.
please remember you are not alone with this.
4 replies | 59 view(s)
01-13-2015, 01:52 AM
unfortunately it is impossible to tell if someone has lupus ...
just from a blood test.
that is why we need to go and see specialists like a...
3 replies | 86 view(s)
01-10-2015, 08:08 PM
and welcome ...
it is good to see that your medical team are keeping active to help you.
many of the members here find it hard to find such...
2 replies | 110 view(s)
01-06-2015, 12:43 AM
it is hard to understand why.
but life is still worth living
hope you find some peace.
14 replies | 978 view(s)
01-02-2015, 08:12 PM
thinking of you,
and hoping you can find answers.
14 replies | 978 view(s)
01-02-2015, 08:08 PM
I have a female friend that has RA.
she has good periods and bad periods.
she also has had to change medication a few times, due to side effects....
2 replies | 73 view(s)
01-01-2015, 07:26 AM
Hope you had a good Christmas, happy New Year!
2 replies | 126 view(s)
01-01-2015, 07:16 AM
May we all have a Happy Pain free New a Year, may our future hold good things for us. May they find the cause, so they can find find the cure
1 replies | 332 view(s)
12-27-2014, 08:19 PM
a good thing to use on tightened muscles ....
an ultrasound machine.
they sell small handheld ones, (designed for facials), fairly cheaply....
11 replies | 700 view(s)
12-27-2014, 08:14 PM
thank you for your openness.
admitting you need help is not easy.
openly telling people you need help is harder.
I too have had to seek help...
6 replies | 234 view(s)
- Date of Birth
- December 2, 1961 (53)
- i have 2 children with my wife cherie.
she also has 4 children from a previous marriage.
we have 4 grandchildren from the older 3.
i have officially been diagnosed with lupus and firbomyalgia.
i have a lot of secondary complaints as well, but they are not really diagnosed.
these secondary complaints include;
headaches, irritable bowel syndrome, dry mouth / throat (especially first thing in the morning),
dry eyes, circulation problems, heat rash (worse than most), skin problems and rashes,
sore joints, muscle weakness, unable to regulate my body temperature, reduced cognative skills,
i sweat when under pressure (physical or mental), mental pauses (where the brain stops for a second or so).
i grew up basically normal. could never compete well in sports.
no real health problems, just got everything that was going around.
always slightly unwell.
bad growing pains, awkward and clumsy.
my symptoms would wax and wain. sometimes good usually just annoying.
i had 2 or 3 mental breakdowns, due to stress. but usually i handled stress really well.
my mind would wander without me being able to focus properly.
i went to counsellors, but they could never relate to my description of my problem.
it was like i was in a helicopter overlooking my life, i could talk about it, (as a third party).
i was never great at school. i passed because everyone knew i tried hard. always only just making the grade.
orally, i did great, having to write what i knew, was a problem.
i had no staminer, sometimes even raising an arm was an issue.
what eventually led to my diagnosis, was pains in the legs and knees. and right shoulder blade.
i suspected blood clots, and was flying to and from work. working in the mines.
doctors could not find what was wrong, as usual.
eventually a doctor put enough together to send me to a rhuematologist.
i was origionally tested for lupus, to rule it out.
the fibromyalgia diagnoses came about 12 months later.
i have not worried testing for the other complaints, i treat them as symptoms of my main two illnesses.
In November 2012, my wife and I seperated.
My lupus has made me very impersonal, and I also fly off at unimportant things. My emotions are either on or off.
Luckily we still get on well. She just cannot live with the unemotional person I have become. My mood changes have destroyed my childrens relationship with me also.
They are afraid of me, and the mood changes.
- pinjarra, western australia
- family, horses
- disability pensioner
When you're stressed, You eat Ice cream, Cake, Chocolate & Sweets. Why? Because stressed spelled backwards is DESSERTS.
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View steve.b's Blog
on 10-30-2012 at 06:48 PM
What do I mean by the real cost?
Lupus costs in every way!
Lupus causes us many difficulties.
Lupus causes us many hard ships.
Lupus causes our health to fail.
All of these things are a cost of having Lupus.
These are not what I am referring to.
As humans we identify people by there traits and personalities.
We say this is a kind old woman,
Or he is a grumpy old may.
Even she is a busy body.
These traits make