08-16-2016, 01:53 AM
( ( ( cyber hugs ) ) )
28 replies | 5153 view(s)
08-16-2016, 01:52 AM
it is good to hear that your doctors are so pro active,
and have you on medication so quickly .....
this is a good thing....
4 replies | 122 view(s)
08-14-2016, 08:35 PM
I have head aches and eye twitches on the left side only.
cyber hugs to you ....
hope they can find a solution
28 replies | 5153 view(s)
08-14-2016, 08:31 PM
one thing to remember.
with medication .... quite often things do improve.
but unfortunately not always.
I am one who has...
2 replies | 96 view(s)
08-07-2016, 04:52 AM
isn't it funny how on here we can chat about things like ibs .....
and not feel embarrassed or upset.
try talking to our "normal" friends and...
2 replies | 154 view(s)
08-04-2016, 03:55 AM
sorry, but your description does not give us much information.
whilst we are not doctors, and cannot diagnose ......
we can talk...
12 replies | 6987 view(s)
08-04-2016, 03:45 AM
the normal person who looks after auto immune disorders is a rheumatologist.
so if the one you are seeing is not treating you seriously...
2 replies | 158 view(s)
08-03-2016, 01:22 AM
sorry I cant help
but I did want to offer cyber hugs
2 replies | 156 view(s)
- Date of Birth
- December 2, 1961 (54)
- i have 2 children with my wife cherie.
she also has 4 children from a previous marriage.
we have 4 grandchildren from the older 3.
i have officially been diagnosed with lupus and firbomyalgia.
i have a lot of secondary complaints as well, but they are not really diagnosed.
these secondary complaints include;
headaches, irritable bowel syndrome, dry mouth / throat (especially first thing in the morning),
dry eyes, circulation problems, heat rash (worse than most), skin problems and rashes,
sore joints, muscle weakness, unable to regulate my body temperature, reduced cognative skills,
i sweat when under pressure (physical or mental), mental pauses (where the brain stops for a second or so).
i grew up basically normal. could never compete well in sports.
no real health problems, just got everything that was going around.
always slightly unwell.
bad growing pains, awkward and clumsy.
my symptoms would wax and wain. sometimes good usually just annoying.
i had 2 or 3 mental breakdowns, due to stress. but usually i handled stress really well.
my mind would wander without me being able to focus properly.
i went to counsellors, but they could never relate to my description of my problem.
it was like i was in a helicopter overlooking my life, i could talk about it, (as a third party).
i was never great at school. i passed because everyone knew i tried hard. always only just making the grade.
orally, i did great, having to write what i knew, was a problem.
i had no staminer, sometimes even raising an arm was an issue.
what eventually led to my diagnosis, was pains in the legs and knees. and right shoulder blade.
i suspected blood clots, and was flying to and from work. working in the mines.
doctors could not find what was wrong, as usual.
eventually a doctor put enough together to send me to a rhuematologist.
i was origionally tested for lupus, to rule it out.
the fibromyalgia diagnoses came about 12 months later.
i have not worried testing for the other complaints, i treat them as symptoms of my main two illnesses.
In November 2012, my wife and I seperated.
My lupus has made me very impersonal, and I also fly off at unimportant things. My emotions are either on or off.
Luckily we still get on well. She just cannot live with the unemotional person I have become. My mood changes have destroyed my childrens relationship with me also.
They are afraid of me, and the mood changes.
- pinjarra, western australia
- family, horses
- disability pensioner
When you're stressed, You eat Ice cream, Cake, Chocolate & Sweets. Why? Because stressed spelled backwards is DESSERTS.
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View steve.b's Blog
on 10-30-2012 at 06:48 PM
What do I mean by the real cost?
Lupus costs in every way!
Lupus causes us many difficulties.
Lupus causes us many hard ships.
Lupus causes our health to fail.
All of these things are a cost of having Lupus.
These are not what I am referring to.
As humans we identify people by there traits and personalities.
We say this is a kind old woman,
Or he is a grumpy old may.
Even she is a busy body.
These traits make