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    I love your signature "When you're stressed, You eat Ice cream, Cake, Chocolate & Sweets. Why? Because stressed spelled backwards is DESSERTS."
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    HI FRIEND...I HOPE you received your card......Its been ROUGH around of my dogs is dying and it is AWFUL.....They are our "furry babies".....Its also making me think EVEN MORE about PAPA...UGH....Im starting sessions with a new therapist soon...She seems really nice and empathetic to MY NEEDS....SO SAD and ALONE at times......HOPE YOU are as OK as can be DEAR FRIEND.....LOVE and HUGS WONDERFUL FRIEND.....XXXOOO
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    HAPPY NEW YEAR DEAR FRIEND.....I sent you a "REAL CARD" today....So I dont know how long it will take to get to you by snail mail..BUT...keep a look out in the mail! LOVE and HUGS XXXOOO
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    AH, YES, I would have to AGREE dear FRIEND...LOL. HARD day today....its the one yr anniversary of us finding papa in his home.....The 5th through the 8th is HARD every month (especially December,obviously) because the 5th was my last day I was with my papa, the 6th was the day I talked to him and after we hung up the phone he died a few hrs later (and I didnt know it, UGH! Steve, the PAIN!!!!), the 7th he lay DEAD in his hallway all alone the whole day and night ..AHHHHHHHHHHHH......MY PAPA! The 8th we find him.......Oh the numbness is back so heavily today Steve....Hope you are "OK". LOVE and HUGS
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    MISS YOU and always thinking of YOU Steve...THANK YOU for your friendship.....XXXOOO
  6. View Conversation
    THINKING of YOU and so GREATFUL you are HERE for ME......Love from afar dear friend.....XXXOOO
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    Just wanted to personally say "YOU GOT THIS SHIRE DEAL in the bag!!!! I am so truly HAPPY for you Steve...YOU are a WONDERFUL PERSON and YOU WILL AMAZE those around YOU with what YOU have to GIVE...AND.. THANK YOU for the last email...Its so NICE to get a males perspective and it just makes IT that much GREATER being that its coming from one of my DEAREST FRIENDS...You HELP ME SO MUCH..YOU are LOVED...Jeannette
  8. View Conversation
    Just wanted to say THANK YOU for ALL you DO on WHL for all of us Steve.....You are a GREAT MAN in MANY WAYS......Love and Hugs XXXOOO
  9. View Conversation
    Oh SO TRUE Steve!!!!! SMILE SMILE SMILE!!!!!! Im HAPPY we can have our moments to SMILE.........It can be VERY DIFFICULT at times as YOU well know......BUT......Its EASY to do with FRIENDS like YOU!!!!! And, NO, I didnt mean to rhyme! LOL Love you DEARLY and VALUE our FRIENDSHIP SO VERY MUCH.....Love and Hugs XXXOOO
  10. View Conversation
    Just wanted to say HELLO to MY FRIEND and I hope you are "OK"...... Love you!
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About steve.b

Basic Information

Date of Birth
December 2, 1961 (55)
About steve.b
i have 2 children with my wife cherie.
she also has 4 children from a previous marriage.
we have 4 grandchildren from the older 3.

i have officially been diagnosed with lupus and firbomyalgia.
i have a lot of secondary complaints as well, but they are not really diagnosed.

these secondary complaints include;
headaches, irritable bowel syndrome, dry mouth / throat (especially first thing in the morning),
dry eyes, circulation problems, heat rash (worse than most), skin problems and rashes,
sore joints, muscle weakness, unable to regulate my body temperature, reduced cognative skills,
i sweat when under pressure (physical or mental), mental pauses (where the brain stops for a second or so).

i grew up basically normal. could never compete well in sports.
no real health problems, just got everything that was going around.
always slightly unwell.
bad growing pains, awkward and clumsy.

my symptoms would wax and wain. sometimes good usually just annoying.
i had 2 or 3 mental breakdowns, due to stress. but usually i handled stress really well.
my mind would wander without me being able to focus properly.

i went to counsellors, but they could never relate to my description of my problem.
it was like i was in a helicopter overlooking my life, i could talk about it, (as a third party).

i was never great at school. i passed because everyone knew i tried hard. always only just making the grade.
orally, i did great, having to write what i knew, was a problem.

i had no staminer, sometimes even raising an arm was an issue.

what eventually led to my diagnosis, was pains in the legs and knees. and right shoulder blade.
i suspected blood clots, and was flying to and from work. working in the mines.
doctors could not find what was wrong, as usual.
eventually a doctor put enough together to send me to a rhuematologist.
i was origionally tested for lupus, to rule it out.

the fibromyalgia diagnoses came about 12 months later.
i have not worried testing for the other complaints, i treat them as symptoms of my main two illnesses.

In November 2012, my wife and I seperated.
My lupus has made me very impersonal, and I also fly off at unimportant things. My emotions are either on or off.
Luckily we still get on well. She just cannot live with the unemotional person I have become. My mood changes have destroyed my childrens relationship with me also.
They are afraid of me, and the mood changes.
pinjarra, western australia
family, horses
disability pensioner


When you're stressed, You eat Ice cream, Cake, Chocolate & Sweets. Why? Because stressed spelled backwards is DESSERTS.


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View steve.b's Blog

Recent Entries

the REAL cost of Lupus

by steve.b on 10-30-2012 at 06:48 PM
What do I mean by the real cost?
Lupus costs in every way!

Lupus causes us many difficulties.
Lupus causes us many hard ships.
Lupus causes our health to fail.

All of these things are a cost of having Lupus.
These are not what I am referring to.

As humans we identify people by there traits and personalities.
We say this is a kind old woman,
Or he is a grumpy old may.
Even she is a busy body.
These traits make

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