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    Merry Christmas, Steve!
    I love you, too.
    Hugs,
    Marla
  2. Merry Christmas to you and your family Steve!

    Rob
  3. View Conversation
    Hi Steve how are you? hope you have a wonderful Xmas and New Year.
  4. View Conversation
    hello steve just checking in to see how you are doing hope you and family well. and if we do not get chance to chat before christmas have a wonderful day hugs to all
  5. View Conversation
    Well, hi! How are you doing?
    I know, I know, i'm horrible - i haven't been on as much as I should. Or even much at all Seems like life is getting the best of my time and brainpower.
  6. View Conversation
    School's finished. We'll be going down to Bunbury around the 29th for a couple of days, we'll try and catch up with you sometime then if it is OK.
  7. Hey there Steve,

    How's being 50 treating you so far? Hope all is well with you and your family.

    Dad is hanging in there, and staying busy still.

    Talk to you later,

    Rob
  8. View Conversation
    Hi Steve, thx for the message! Haven't been around in a while, xmas is the crazy season for my line of work, for some reason people lose the plot around this time of year. How have you been? Whats plans for xmas?
  9. View Conversation
    Hi cyber uncle Steve =) I am doing alright I suppose. Just wore out. So far its taking more of mental toll on me than physical lol after this week my current classes are over and I get a 3 week break from school!!! : D Im not sure what all Im doing after this next semester. I also got a second job offer this week....I really need the money but I dont know how I can work another job along with everything else wearing me out right now =(
  10. View Conversation
    Hi Steve! Thanks for your message welcoming me back!!! Im glad I can throw my WOO HOOS around again!!! How have you been? I hope not too bad! You are in my THOUGHTS!!!!! LOVE and HUGS!!!!! xxxooo
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About steve.b

Basic Information

Date of Birth
December 2, 1961 (52)
About steve.b
Biography:
i have 2 children with my wife cherie.
she also has 4 children from a previous marriage.
we have 4 grandchildren from the older 3.

i have officially been diagnosed with lupus and firbomyalgia.
i have a lot of secondary complaints as well, but they are not really diagnosed.

these secondary complaints include;
headaches, irritable bowel syndrome, dry mouth / throat (especially first thing in the morning),
dry eyes, circulation problems, heat rash (worse than most), skin problems and rashes,
sore joints, muscle weakness, unable to regulate my body temperature, reduced cognative skills,
i sweat when under pressure (physical or mental), mental pauses (where the brain stops for a second or so).

i grew up basically normal. could never compete well in sports.
no real health problems, just got everything that was going around.
always slightly unwell.
bad growing pains, awkward and clumsy.

my symptoms would wax and wain. sometimes good usually just annoying.
i had 2 or 3 mental breakdowns, due to stress. but usually i handled stress really well.
my mind would wander without me being able to focus properly.

i went to counsellors, but they could never relate to my description of my problem.
it was like i was in a helicopter overlooking my life, i could talk about it, (as a third party).

i was never great at school. i passed because everyone knew i tried hard. always only just making the grade.
orally, i did great, having to write what i knew, was a problem.

i had no staminer, sometimes even raising an arm was an issue.

what eventually led to my diagnosis, was pains in the legs and knees. and right shoulder blade.
i suspected blood clots, and was flying to and from work. working in the mines.
doctors could not find what was wrong, as usual.
eventually a doctor put enough together to send me to a rhuematologist.
i was origionally tested for lupus, to rule it out.

the fibromyalgia diagnoses came about 12 months later.
i have not worried testing for the other complaints, i treat them as symptoms of my main two illnesses.

In November 2012, my wife and I seperated.
My lupus has made me very impersonal, and I also fly off at unimportant things. My emotions are either on or off.
Luckily we still get on well. She just cannot live with the unemotional person I have become. My mood changes have destroyed my childrens relationship with me also.
They are afraid of me, and the mood changes.
Location:
pinjarra, western australia
Interests:
family, horses
Occupation:
disability pensioner

Signature


When you're stressed, You eat Ice cream, Cake, Chocolate & Sweets. Why? Because stressed spelled backwards is DESSERTS.

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03-09-2011
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View steve.b's Blog

Recent Entries

the REAL cost of Lupus

by steve.b on 10-30-2012 at 06:48 PM
What do I mean by the real cost?
Lupus costs in every way!

Lupus causes us many difficulties.
Lupus causes us many hard ships.
Lupus causes our health to fail.

All of these things are a cost of having Lupus.
These are not what I am referring to.

As humans we identify people by there traits and personalities.
We say this is a kind old woman,
Or he is a grumpy old may.
Even she is a busy body.
These traits make

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