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    Hope you are feeling better!
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    hi steve. thanks so much for the welcome back message. I have missed everyone, and i am so happy to be back. looking forward to catching up with you. I hope you have been feeling ok. I am trying to go back and read posts to catch up on everyone. have a great friday
  3. Hey there, how are you doing?
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    sorry steve you are having rough time these rotten waiting lists are bad its a joke hope you feel better soon hugs kim
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    evening steve just thought i would see how you are feeling we have not chatted for awhile hope you and family alright hugs kim
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    Ty for all your support and help! I hope that ur road to recovery gets easier every day
  7. Hi Steve,

    I'm hoping today is better too. It's 10am here, so the day is just getting started. I managed to do a little work out in the shop for the first time in weeks, so I guess that's progress.

    Good job weeding out today's spammers from the legitimate new members. You got all the right ones.

  8. View Conversation
    Hi, only for a short while. Happy Easter to you too.
    Congrats by the way
  9. Thanks for everything, Steve.

    Right now, I'm just trying to occupy my mind by doing normal everyday things.

    Otherwise, the waiting is unbearable.
  10. View Conversation
    That sounds awful. I hope that you can get it straightened out! Can you walk ok with it? I'm hoping I can get it worked out too. I don't know what I'm going to do this summer.
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About steve.b

Basic Information

Date of Birth
December 2, 1961 (55)
About steve.b
i have 2 children with my wife cherie.
she also has 4 children from a previous marriage.
we have 4 grandchildren from the older 3.

i have officially been diagnosed with lupus and firbomyalgia.
i have a lot of secondary complaints as well, but they are not really diagnosed.

these secondary complaints include;
headaches, irritable bowel syndrome, dry mouth / throat (especially first thing in the morning),
dry eyes, circulation problems, heat rash (worse than most), skin problems and rashes,
sore joints, muscle weakness, unable to regulate my body temperature, reduced cognative skills,
i sweat when under pressure (physical or mental), mental pauses (where the brain stops for a second or so).

i grew up basically normal. could never compete well in sports.
no real health problems, just got everything that was going around.
always slightly unwell.
bad growing pains, awkward and clumsy.

my symptoms would wax and wain. sometimes good usually just annoying.
i had 2 or 3 mental breakdowns, due to stress. but usually i handled stress really well.
my mind would wander without me being able to focus properly.

i went to counsellors, but they could never relate to my description of my problem.
it was like i was in a helicopter overlooking my life, i could talk about it, (as a third party).

i was never great at school. i passed because everyone knew i tried hard. always only just making the grade.
orally, i did great, having to write what i knew, was a problem.

i had no staminer, sometimes even raising an arm was an issue.

what eventually led to my diagnosis, was pains in the legs and knees. and right shoulder blade.
i suspected blood clots, and was flying to and from work. working in the mines.
doctors could not find what was wrong, as usual.
eventually a doctor put enough together to send me to a rhuematologist.
i was origionally tested for lupus, to rule it out.

the fibromyalgia diagnoses came about 12 months later.
i have not worried testing for the other complaints, i treat them as symptoms of my main two illnesses.

In November 2012, my wife and I seperated.
My lupus has made me very impersonal, and I also fly off at unimportant things. My emotions are either on or off.
Luckily we still get on well. She just cannot live with the unemotional person I have become. My mood changes have destroyed my childrens relationship with me also.
They are afraid of me, and the mood changes.
pinjarra, western australia
family, horses
disability pensioner


When you're stressed, You eat Ice cream, Cake, Chocolate & Sweets. Why? Because stressed spelled backwards is DESSERTS.


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View steve.b's Blog

Recent Entries

the REAL cost of Lupus

by steve.b on 10-30-2012 at 06:48 PM
What do I mean by the real cost?
Lupus costs in every way!

Lupus causes us many difficulties.
Lupus causes us many hard ships.
Lupus causes our health to fail.

All of these things are a cost of having Lupus.
These are not what I am referring to.

As humans we identify people by there traits and personalities.
We say this is a kind old woman,
Or he is a grumpy old may.
Even she is a busy body.
These traits make

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