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    Special thx, mr. steve
    For encouraging me.
    Hoping advice and help from u.
    I also want to know yr gmail account and facebook account if u dont mind me
  2. View Conversation
    my very dear friend you have a wonderful christmas luv kim
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    hi steve just checking to see how you are doing i am here if you need to chat hugs kim l
  4. View Conversation
    Steve!
    I just discovered a note from you from back in August asking how I was doing and realised I never replied! I'm so sorry, am properly rubbish at keeping in touch with people.
    I just popped up a post about my hip being very frustrating and giving way all the time but other than all my aches and pain issues I'm doing great. I'd disappeared while pregnant with baby number three but I'm back now so hope to get back in touch with everyone again!
    How are things with you and yours?
    xx
  5. View Conversation
    well as long as everything else is good, thats what matters
  6. View Conversation
    hello.
    i've finally made my way back to the site! hope all is well with you.
  7. View Conversation
    hi stevejust checking in to see how you are feeling my friend hope you and family doing well. luv kim.
  8. View Conversation
    Just stopping in to say hi and to check on you. Hope all is well
  9. View Conversation
    hi yourself. how are you feeling? so glad you saw me here.
  10. View Conversation
    Hi Steve! Thanks for checking in, how r u? You must be a mind reader I was driving home from work tonight thinking I needed to jump on the forum because I haven't been on in so long and wondered how you were. Hope you've been keeping well! I've been really good since about march 2011 and have been off steroids coming up 10 months with no worries so far (touch wood). Look forward to hearing from you soon.
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About steve.b

Basic Information

Date of Birth
December 2, 1961 (52)
About steve.b
Biography:
i have 2 children with my wife cherie.
she also has 4 children from a previous marriage.
we have 4 grandchildren from the older 3.

i have officially been diagnosed with lupus and firbomyalgia.
i have a lot of secondary complaints as well, but they are not really diagnosed.

these secondary complaints include;
headaches, irritable bowel syndrome, dry mouth / throat (especially first thing in the morning),
dry eyes, circulation problems, heat rash (worse than most), skin problems and rashes,
sore joints, muscle weakness, unable to regulate my body temperature, reduced cognative skills,
i sweat when under pressure (physical or mental), mental pauses (where the brain stops for a second or so).

i grew up basically normal. could never compete well in sports.
no real health problems, just got everything that was going around.
always slightly unwell.
bad growing pains, awkward and clumsy.

my symptoms would wax and wain. sometimes good usually just annoying.
i had 2 or 3 mental breakdowns, due to stress. but usually i handled stress really well.
my mind would wander without me being able to focus properly.

i went to counsellors, but they could never relate to my description of my problem.
it was like i was in a helicopter overlooking my life, i could talk about it, (as a third party).

i was never great at school. i passed because everyone knew i tried hard. always only just making the grade.
orally, i did great, having to write what i knew, was a problem.

i had no staminer, sometimes even raising an arm was an issue.

what eventually led to my diagnosis, was pains in the legs and knees. and right shoulder blade.
i suspected blood clots, and was flying to and from work. working in the mines.
doctors could not find what was wrong, as usual.
eventually a doctor put enough together to send me to a rhuematologist.
i was origionally tested for lupus, to rule it out.

the fibromyalgia diagnoses came about 12 months later.
i have not worried testing for the other complaints, i treat them as symptoms of my main two illnesses.

In November 2012, my wife and I seperated.
My lupus has made me very impersonal, and I also fly off at unimportant things. My emotions are either on or off.
Luckily we still get on well. She just cannot live with the unemotional person I have become. My mood changes have destroyed my childrens relationship with me also.
They are afraid of me, and the mood changes.
Location:
pinjarra, western australia
Interests:
family, horses
Occupation:
disability pensioner

Signature


When you're stressed, You eat Ice cream, Cake, Chocolate & Sweets. Why? Because stressed spelled backwards is DESSERTS.

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03-09-2011
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View steve.b's Blog

Recent Entries

the REAL cost of Lupus

by steve.b on 10-30-2012 at 06:48 PM
What do I mean by the real cost?
Lupus costs in every way!

Lupus causes us many difficulties.
Lupus causes us many hard ships.
Lupus causes our health to fail.

All of these things are a cost of having Lupus.
These are not what I am referring to.

As humans we identify people by there traits and personalities.
We say this is a kind old woman,
Or he is a grumpy old may.
Even she is a busy body.
These traits make

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