Tab Content
No Recent Activity

260 Visitor Messages

  1. View Conversation
    OK I'll take some folic acid at night with Plaquenil, and I am on fish oil, liquid (YUK) 5ml.
    The good thing I am looking forward to is that if I have less pain, I will be able to do some decent exercises which will stop my muscles from wasting away.
  2. View Conversation
    I have some folic acid in the bathroom, but I stopped taking them when the last 2 blood tests showed that I was not anaemic anymore
  3. View Conversation
    EXCUSE ME??????
    Old Man?
    How normal are you, hidden up in your utompian farm, surrounded by waterfalls and flowing hills, thinking you are living in heaven on earth?
  4. View Conversation
    I asked for a print out from the pharmacist. I assumed that everyone had the same steroids, but now you have made me realise that is not the case
  5. View Conversation
    Hi Steve.
    Holiday was AMAZING, thanks for asking. Had an absolute blast. Was freezing cold though. Having some issues getting my INR back to normal range, probably from the change in diet and a bit of drinking I did but at least its not low.
  6. when i was first diagnosed. i was on 5mg.
    when i had my synus operation, i was on 25mg.
    both times it was panafcortelone (prednisolone)

    and i am normal rofl

    do you have enough information on corticosteroids?
  7. View Conversation
    The ones that give you a hairy chest, deep voice and BIG muscles (which I need because mine are wasting away)
    Prednisolone (Solone 5mg)
  8. View Conversation
    Oh now it is 6 messages
    No that would be 7 messages now, after this one
    Oh Gosh, just check the messages down below and you will find out
    Or if you are too lazy to count the messages I'll just tell you, I'm taking steroids now
  9. View Conversation
    Ok, count 5 messages down - and you have the answer
  10. View Conversation
    I got my prescription in the mail today - just got my tablets from the pharmacist - now reading all the information - hopefully it will work. I am only on 5mg, so I am not anticipating any side effects, but I do hope it does help though, even though I am on a small dose
Showing Visitor Messages 231 to 240 of 260
Page 24 of 26 FirstFirst ... 142223242526 LastLast
Page 24 of 26 FirstFirst ... 142223242526 LastLast
About steve.b

Basic Information

Date of Birth
December 2, 1961 (55)
About steve.b
i have 2 children with my wife cherie.
she also has 4 children from a previous marriage.
we have 4 grandchildren from the older 3.

i have officially been diagnosed with lupus and firbomyalgia.
i have a lot of secondary complaints as well, but they are not really diagnosed.

these secondary complaints include;
headaches, irritable bowel syndrome, dry mouth / throat (especially first thing in the morning),
dry eyes, circulation problems, heat rash (worse than most), skin problems and rashes,
sore joints, muscle weakness, unable to regulate my body temperature, reduced cognative skills,
i sweat when under pressure (physical or mental), mental pauses (where the brain stops for a second or so).

i grew up basically normal. could never compete well in sports.
no real health problems, just got everything that was going around.
always slightly unwell.
bad growing pains, awkward and clumsy.

my symptoms would wax and wain. sometimes good usually just annoying.
i had 2 or 3 mental breakdowns, due to stress. but usually i handled stress really well.
my mind would wander without me being able to focus properly.

i went to counsellors, but they could never relate to my description of my problem.
it was like i was in a helicopter overlooking my life, i could talk about it, (as a third party).

i was never great at school. i passed because everyone knew i tried hard. always only just making the grade.
orally, i did great, having to write what i knew, was a problem.

i had no staminer, sometimes even raising an arm was an issue.

what eventually led to my diagnosis, was pains in the legs and knees. and right shoulder blade.
i suspected blood clots, and was flying to and from work. working in the mines.
doctors could not find what was wrong, as usual.
eventually a doctor put enough together to send me to a rhuematologist.
i was origionally tested for lupus, to rule it out.

the fibromyalgia diagnoses came about 12 months later.
i have not worried testing for the other complaints, i treat them as symptoms of my main two illnesses.

In November 2012, my wife and I seperated.
My lupus has made me very impersonal, and I also fly off at unimportant things. My emotions are either on or off.
Luckily we still get on well. She just cannot live with the unemotional person I have become. My mood changes have destroyed my childrens relationship with me also.
They are afraid of me, and the mood changes.
pinjarra, western australia
family, horses
disability pensioner


When you're stressed, You eat Ice cream, Cake, Chocolate & Sweets. Why? Because stressed spelled backwards is DESSERTS.


Total Posts
Total Posts
Posts Per Day
Visitor Messages
Total Messages
Most Recent Message
05-04-2014 07:08 PM
Total Thanks
Total Thanks
  • Thanked 1,844 Times in 1,279 Posts
General Information
Last Activity
06-13-2017 06:02 AM
Join Date

18 Friends

Showing Friends 1 to 10 of 18
Page 1 of 2 12 LastLast
View steve.b's Blog

Recent Entries

the REAL cost of Lupus

by steve.b on 10-30-2012 at 06:48 PM
What do I mean by the real cost?
Lupus costs in every way!

Lupus causes us many difficulties.
Lupus causes us many hard ships.
Lupus causes our health to fail.

All of these things are a cost of having Lupus.
These are not what I am referring to.

As humans we identify people by there traits and personalities.
We say this is a kind old woman,
Or he is a grumpy old may.
Even she is a busy body.
These traits make

Read More