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  1. View Conversation
    And right back at you- HI!!!!!

    Compliment- you give good advice
  2. View Conversation
    Thank you =) It was a good last day. It hasnt hit me yet that I'm done.
  3. View Conversation
    Why did Cherie have a bak epidural?
    What hospital will she be going to, if I have time I might pop in and see her, that is if she is up in Perth.
  4. View Conversation
    The question is ... did you answer me??

    No not exactly, you posted your answer to me on your profile, now I thought I was DUMB ... but then again, you are turing 50 soon, and I, well, I have a long time to go until I turn 50. Next year. Good one OLD MAN!
  5. View Conversation
    OK, OK, I just asked myself "How was your day? And how is your lovely family??"
    Now how DUMB was that??????

    So now I think I should ask you ...
    How was your day? And how is your lovely family??
  6. View Conversation
    Strange ... today was actually pretty good, the best I have felt physically for ages. Weird how different I feel.

    Mind you though, everyday is FANTASTIC - I LOVE my life and all that I do. But I HATE how Lupus tried to stop me from doing all the things I LOVE!! The last week has been the worst for me since being diagnosed, and yesterday was so BADDDDDDDD. But today, was so different. It was a better day, not really a good day, but a lot better. I am so happy with that. The only bad thing is this stupid new Apple lap top computer I have to use, I have no idea what I am doing!!!!
  7. View Conversation
    just saying hi

  8. View Conversation
    I just wanted to stop by for a moment and tell you what a difference you have made to this place. Your posts are always real and always caring. I appreciate you
  9. View Conversation
    No difference with my pain yet, probably because I am only on 5mg. I went to my physio this afternoon, and he took more exercises off me. Now all I can do is sit on a ball and do even lighter exercises, and take it a bit easier in the pool. I really hope this ends soon, because every week I am getting worse. My physio is trying hard to stop me from loosing any more muscles. Hopefully, the end is near! You know what would have made my day perfect, if my new teacher's desk turned up, it is 5 days late!
  10. View Conversation
    Hi Steve how was your weekend?
    We went up to Toodyay to a friend's property and Ellice got to work with a horse that hasn't been ridden for 3 years, and she went bare back. She had such a fun day!
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About steve.b

Basic Information

Date of Birth
December 2, 1961 (55)
About steve.b
i have 2 children with my wife cherie.
she also has 4 children from a previous marriage.
we have 4 grandchildren from the older 3.

i have officially been diagnosed with lupus and firbomyalgia.
i have a lot of secondary complaints as well, but they are not really diagnosed.

these secondary complaints include;
headaches, irritable bowel syndrome, dry mouth / throat (especially first thing in the morning),
dry eyes, circulation problems, heat rash (worse than most), skin problems and rashes,
sore joints, muscle weakness, unable to regulate my body temperature, reduced cognative skills,
i sweat when under pressure (physical or mental), mental pauses (where the brain stops for a second or so).

i grew up basically normal. could never compete well in sports.
no real health problems, just got everything that was going around.
always slightly unwell.
bad growing pains, awkward and clumsy.

my symptoms would wax and wain. sometimes good usually just annoying.
i had 2 or 3 mental breakdowns, due to stress. but usually i handled stress really well.
my mind would wander without me being able to focus properly.

i went to counsellors, but they could never relate to my description of my problem.
it was like i was in a helicopter overlooking my life, i could talk about it, (as a third party).

i was never great at school. i passed because everyone knew i tried hard. always only just making the grade.
orally, i did great, having to write what i knew, was a problem.

i had no staminer, sometimes even raising an arm was an issue.

what eventually led to my diagnosis, was pains in the legs and knees. and right shoulder blade.
i suspected blood clots, and was flying to and from work. working in the mines.
doctors could not find what was wrong, as usual.
eventually a doctor put enough together to send me to a rhuematologist.
i was origionally tested for lupus, to rule it out.

the fibromyalgia diagnoses came about 12 months later.
i have not worried testing for the other complaints, i treat them as symptoms of my main two illnesses.

In November 2012, my wife and I seperated.
My lupus has made me very impersonal, and I also fly off at unimportant things. My emotions are either on or off.
Luckily we still get on well. She just cannot live with the unemotional person I have become. My mood changes have destroyed my childrens relationship with me also.
They are afraid of me, and the mood changes.
pinjarra, western australia
family, horses
disability pensioner


When you're stressed, You eat Ice cream, Cake, Chocolate & Sweets. Why? Because stressed spelled backwards is DESSERTS.


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Recent Entries

the REAL cost of Lupus

by steve.b on 10-30-2012 at 06:48 PM
What do I mean by the real cost?
Lupus costs in every way!

Lupus causes us many difficulties.
Lupus causes us many hard ships.
Lupus causes our health to fail.

All of these things are a cost of having Lupus.
These are not what I am referring to.

As humans we identify people by there traits and personalities.
We say this is a kind old woman,
Or he is a grumpy old may.
Even she is a busy body.
These traits make

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