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    Oh and by the way, I phoned my Rheumy because you spoke to me and probably felt out of place telling me that I am getting worse and something needs to be done about it.

    So yes, you are out of place, but then you are totally in the right place to tell me to do something!!!!!!!!!!!! Thanks big brother (OLD MAN!)
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    I also take fish oil - YUK!!!
    And Osteo and Neurofen.

    And folic acid like you suggested
  3. View Conversation
    3 weeks ago My Rheumy increased my Plaquenil to 400mg. He told me he was booked out for the next week and was going to be away for the next 3 weeks. So I can see him in 4 weeks time

    2 weeks ago, a week after my Plaq increase I phoned him to say that my pain is getting worse and moving to other places and I was worried that it will get worse while he was away before I could see him. So he started me on 5mg Prednisolone.

    I am seeing him in just over 3 weeks time. I felt a bit better about 3 days ago, that was 2 1/2 weeks after Plaq increase and 1 week after Pred.

    Yesterday and today I have noticed things going down hill again. But I have to wait until he gets back to let him know.

    I am really worried about the increase muscle loss. I am googling how I can increase my muscles and going to talk to my physio when I see him next. He seems to know what he is doing, but I want to know a bit more about how my muscles work
  4. i hope i am not out of place, but has your rhuemy missed something. with your symptoms getting worse, it is as if you do not have the medicine balance right yet.

    i have to say something, because i hate seeing you suffer like this.

    if you want a second opinion, i am happy to give you my rhuemy's number
  5. had a son come over last night, the one you met. we collected wood for him today. and put the rain water tank onto the stand.
    apart from that, i spent a few hours in the hammock, lovely weather for it.
  6. View Conversation
    Ha ha, I needed a magnifying glass to see in those windows. Have you been there before?
    We had a very late lunch at the Ravenswood Hotel. It is such a nice place to eat, just beside the river. If only I had your phone number I could have phoned you to come and have lunch with us. We got home around 5:30, a long day but such a lovely day though. Perfect weather, perfect company. Now I am researching "building up muscles" before all of mine disappear!!!
    So what exciting things did you do on your farm?
  7. View Conversation
    How are you today? We are heading off to Mandurah soon to check out Abingdon Miniature Village. Have you been there and is it worth seeing?
  8. View Conversation
    Figure out college stuff, then rest a relax for a few months before I head off.
  9. View Conversation
    How is Cherrie feeling now that her back is feeling fine (I hope it is feeling fine)
    Is she planning to go bare back, because she can now ......
  10. Hey Steve,

    Hi back! How's it going on your side of the world? I had a pretty good day here. I spent the day outside making the yard look nice-it looks pretty good. Karen is home, and has that "give me a backrub" look to her, so duty calls...

    Hope you and your family are having a good day,

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About steve.b

Basic Information

Date of Birth
December 2, 1961 (55)
About steve.b
i have 2 children with my wife cherie.
she also has 4 children from a previous marriage.
we have 4 grandchildren from the older 3.

i have officially been diagnosed with lupus and firbomyalgia.
i have a lot of secondary complaints as well, but they are not really diagnosed.

these secondary complaints include;
headaches, irritable bowel syndrome, dry mouth / throat (especially first thing in the morning),
dry eyes, circulation problems, heat rash (worse than most), skin problems and rashes,
sore joints, muscle weakness, unable to regulate my body temperature, reduced cognative skills,
i sweat when under pressure (physical or mental), mental pauses (where the brain stops for a second or so).

i grew up basically normal. could never compete well in sports.
no real health problems, just got everything that was going around.
always slightly unwell.
bad growing pains, awkward and clumsy.

my symptoms would wax and wain. sometimes good usually just annoying.
i had 2 or 3 mental breakdowns, due to stress. but usually i handled stress really well.
my mind would wander without me being able to focus properly.

i went to counsellors, but they could never relate to my description of my problem.
it was like i was in a helicopter overlooking my life, i could talk about it, (as a third party).

i was never great at school. i passed because everyone knew i tried hard. always only just making the grade.
orally, i did great, having to write what i knew, was a problem.

i had no staminer, sometimes even raising an arm was an issue.

what eventually led to my diagnosis, was pains in the legs and knees. and right shoulder blade.
i suspected blood clots, and was flying to and from work. working in the mines.
doctors could not find what was wrong, as usual.
eventually a doctor put enough together to send me to a rhuematologist.
i was origionally tested for lupus, to rule it out.

the fibromyalgia diagnoses came about 12 months later.
i have not worried testing for the other complaints, i treat them as symptoms of my main two illnesses.

In November 2012, my wife and I seperated.
My lupus has made me very impersonal, and I also fly off at unimportant things. My emotions are either on or off.
Luckily we still get on well. She just cannot live with the unemotional person I have become. My mood changes have destroyed my childrens relationship with me also.
They are afraid of me, and the mood changes.
pinjarra, western australia
family, horses
disability pensioner


When you're stressed, You eat Ice cream, Cake, Chocolate & Sweets. Why? Because stressed spelled backwards is DESSERTS.


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Recent Entries

the REAL cost of Lupus

by steve.b on 10-30-2012 at 06:48 PM
What do I mean by the real cost?
Lupus costs in every way!

Lupus causes us many difficulties.
Lupus causes us many hard ships.
Lupus causes our health to fail.

All of these things are a cost of having Lupus.
These are not what I am referring to.

As humans we identify people by there traits and personalities.
We say this is a kind old woman,
Or he is a grumpy old may.
Even she is a busy body.
These traits make

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