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    Linda and I are waiting for you to get to chat! Linda said (and I quote) "Tell him to get his butt in here"
  2. View Conversation
    How is Cherrie today, is she able to feel good about doing some things, pain free. Mind you though, I bet her knee still hurts. Count down, how exciting....
  3. View Conversation
    Well you have changed from a poodle to a big pit bull. That must make you really happy, not being called a fancy boy any more. Just as well you are a pit bull, being a poodle, you couldn't really help Cherrie with her recovery
  4. View Conversation
    Is it the 8 th June??
  5. View Conversation
    IS your rain tank full yet, and are the water falls flowing?
    How is Cherrie?
  6. View Conversation
    9:40AM here. Rest well!
  7. View Conversation
    They would be correct. They help me too. They help each of us be stronger then we would be alone.
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    Just wanted to let you know how much I enjoy you in this group. You are a valued member of this family!
  9. View Conversation
    Hi back! Haven't been on in a while, been super super busy at work. Hope all is well with u!
  10. View Conversation
    thanks steve sarah been cleared of cancer not sure about mother inlaw my brother they believe may have serious problems needing heart doctor and kidney specialist, taking one day at time thankyou for caring my friend wish you and your family well hugs kim l
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About steve.b

Basic Information

Date of Birth
December 2, 1961 (52)
About steve.b
Biography:
i have 2 children with my wife cherie.
she also has 4 children from a previous marriage.
we have 4 grandchildren from the older 3.

i have officially been diagnosed with lupus and firbomyalgia.
i have a lot of secondary complaints as well, but they are not really diagnosed.

these secondary complaints include;
headaches, irritable bowel syndrome, dry mouth / throat (especially first thing in the morning),
dry eyes, circulation problems, heat rash (worse than most), skin problems and rashes,
sore joints, muscle weakness, unable to regulate my body temperature, reduced cognative skills,
i sweat when under pressure (physical or mental), mental pauses (where the brain stops for a second or so).

i grew up basically normal. could never compete well in sports.
no real health problems, just got everything that was going around.
always slightly unwell.
bad growing pains, awkward and clumsy.

my symptoms would wax and wain. sometimes good usually just annoying.
i had 2 or 3 mental breakdowns, due to stress. but usually i handled stress really well.
my mind would wander without me being able to focus properly.

i went to counsellors, but they could never relate to my description of my problem.
it was like i was in a helicopter overlooking my life, i could talk about it, (as a third party).

i was never great at school. i passed because everyone knew i tried hard. always only just making the grade.
orally, i did great, having to write what i knew, was a problem.

i had no staminer, sometimes even raising an arm was an issue.

what eventually led to my diagnosis, was pains in the legs and knees. and right shoulder blade.
i suspected blood clots, and was flying to and from work. working in the mines.
doctors could not find what was wrong, as usual.
eventually a doctor put enough together to send me to a rhuematologist.
i was origionally tested for lupus, to rule it out.

the fibromyalgia diagnoses came about 12 months later.
i have not worried testing for the other complaints, i treat them as symptoms of my main two illnesses.

In November 2012, my wife and I seperated.
My lupus has made me very impersonal, and I also fly off at unimportant things. My emotions are either on or off.
Luckily we still get on well. She just cannot live with the unemotional person I have become. My mood changes have destroyed my childrens relationship with me also.
They are afraid of me, and the mood changes.
Location:
pinjarra, western australia
Interests:
family, horses
Occupation:
disability pensioner

Signature


When you're stressed, You eat Ice cream, Cake, Chocolate & Sweets. Why? Because stressed spelled backwards is DESSERTS.

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Last Activity
Today 06:13 AM
Join Date
03-09-2011
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View steve.b's Blog

Recent Entries

the REAL cost of Lupus

by steve.b on 10-30-2012 at 06:48 PM
What do I mean by the real cost?
Lupus costs in every way!

Lupus causes us many difficulties.
Lupus causes us many hard ships.
Lupus causes our health to fail.

All of these things are a cost of having Lupus.
These are not what I am referring to.

As humans we identify people by there traits and personalities.
We say this is a kind old woman,
Or he is a grumpy old may.
Even she is a busy body.
These traits make

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