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    I am home from work today a bit drugged up from cymbalta increase. I still have pain and spasms. It feels like vice grips are on my vertabre at base of neck and spasms radiate across and up neck. My head hurts daily and I can't drive in this shape. Other than this I'm great. How about you? (grin).

    Thanks for the help. Folic acid. Is that in B complex? I take super B. Drink cherry juice with tonic water now for quinine to help with pain.

    I am hoping and praying the cymbalta helps with the intensity of pain & spasms. I have to get some relief soon. Wearing me down pretty good lately.

    Thanks for you help. Tammy
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    Great news for you Steve, YOu must be so relieved. When did Cherrie get home? Hopefully the kids are helping out heaps
  3. Hey there Steve, how's everything going on your side of the world? It's another typical New England summer day here-cold and rainy. Hope all is well with you.

    Rob
  4. yes the "other" sunday. lol
    unfortunately i wont be there, would be interesting.

    cherie is doing well.
    it is marvelous what they can do nowdays.
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    Do you mean Saturday? I was thinking about it, but after going to the dr today, I am not sure
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    Hi Steve, I thought I would let you know about my rheumy appointment today. He has stopped my Prednisolone because I have been getting worse and he is sending me to someone else for a second opinion because my muscles are deteriorating and my pain is getting worse, without much relief from pain killers. He has sent me off to get heaps of tests, and he suspects that I may have some sort of muscle disease. Apparently my blood results don't reflect the pain levels I am experiencing, and the fact that I don't have any swelling. The Doc said that I am a mystery. So now I am going to change my user name to "Mysterious Woman"
  7. Hey Steve, I just wanted to tell you that Tgal, Saysusie, and myself appreciate the thank you thread you started. Despite the minor bump in the road that came about these past few days, everything is rolling along nicely again.

    Rob
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    Love your pictures. I am going to try to post more pics as I get used to this whole thing. I am not computer literate, but this is making me! LOL Have a great day and enjoy that wonderful place you are living! Thank you again for your encouragement.
  9. View Conversation
    Oh my goodness you are soooo blessed! I miss my farm terribly. I had to leave because I had an unsupervised trailor park near me and they were causing me so much stress I kept getting sick. They were up all night shooting and beating on each other. Then they had subwoofers in their trailors. Thump all day all night. I now have a little cottage in the country. I have farm land on two sides of me and some houses with normal neighbors nearby. I hated it at first but with a lot of prayer I am adjusting.

    Wow 11 horses. That's a lot of labor of love. Enjoy...enjoy...enjoy!
    Sooo happy for you! Thanks again for your honesty concerning the mental health piece of this AI chaos.
  10. View Conversation
    Oi .. .get your BUTT into the chat room
    tgal and I want someone to annoy
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About steve.b

Basic Information

Date of Birth
December 2, 1961 (52)
About steve.b
Biography:
i have 2 children with my wife cherie.
she also has 4 children from a previous marriage.
we have 4 grandchildren from the older 3.

i have officially been diagnosed with lupus and firbomyalgia.
i have a lot of secondary complaints as well, but they are not really diagnosed.

these secondary complaints include;
headaches, irritable bowel syndrome, dry mouth / throat (especially first thing in the morning),
dry eyes, circulation problems, heat rash (worse than most), skin problems and rashes,
sore joints, muscle weakness, unable to regulate my body temperature, reduced cognative skills,
i sweat when under pressure (physical or mental), mental pauses (where the brain stops for a second or so).

i grew up basically normal. could never compete well in sports.
no real health problems, just got everything that was going around.
always slightly unwell.
bad growing pains, awkward and clumsy.

my symptoms would wax and wain. sometimes good usually just annoying.
i had 2 or 3 mental breakdowns, due to stress. but usually i handled stress really well.
my mind would wander without me being able to focus properly.

i went to counsellors, but they could never relate to my description of my problem.
it was like i was in a helicopter overlooking my life, i could talk about it, (as a third party).

i was never great at school. i passed because everyone knew i tried hard. always only just making the grade.
orally, i did great, having to write what i knew, was a problem.

i had no staminer, sometimes even raising an arm was an issue.

what eventually led to my diagnosis, was pains in the legs and knees. and right shoulder blade.
i suspected blood clots, and was flying to and from work. working in the mines.
doctors could not find what was wrong, as usual.
eventually a doctor put enough together to send me to a rhuematologist.
i was origionally tested for lupus, to rule it out.

the fibromyalgia diagnoses came about 12 months later.
i have not worried testing for the other complaints, i treat them as symptoms of my main two illnesses.

In November 2012, my wife and I seperated.
My lupus has made me very impersonal, and I also fly off at unimportant things. My emotions are either on or off.
Luckily we still get on well. She just cannot live with the unemotional person I have become. My mood changes have destroyed my childrens relationship with me also.
They are afraid of me, and the mood changes.
Location:
pinjarra, western australia
Interests:
family, horses
Occupation:
disability pensioner

Signature


When you're stressed, You eat Ice cream, Cake, Chocolate & Sweets. Why? Because stressed spelled backwards is DESSERTS.

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View steve.b's Blog

Recent Entries

the REAL cost of Lupus

by steve.b on 10-30-2012 at 06:48 PM
What do I mean by the real cost?
Lupus costs in every way!

Lupus causes us many difficulties.
Lupus causes us many hard ships.
Lupus causes our health to fail.

All of these things are a cost of having Lupus.
These are not what I am referring to.

As humans we identify people by there traits and personalities.
We say this is a kind old woman,
Or he is a grumpy old may.
Even she is a busy body.
These traits make

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