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    SUCH a HARD DAY Steve......I sent you an email. Not sure when you will get it though being in Australia...SO SAD Steve.....XXXOOO
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    HI Steve! Finally am able to pop back on for a bit!!! Ive been so SICK with that "bug" i told you about. UGH!!! Still in me BUT not as BAD. FIGHTING the FIGHT!!!! I want to send you an email on some "things", so I will do "that" witihin the next few days. SO MUCH GOING ON. I printed out your emails to me so I can read them in my TIMES of NEED......THEY HELP in MANY WAYS......I keep them in the end table drawer next to my chair I am always in when resting. (Which is ALOT!) They are easy for ME to grab then! Carl says hes glad I have "them" to "help me".....THANK YOU again... I hope you are well and talk SOON! Love and Hugs, Jeannettte XXXOOO
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    I ADORE YOU and OUR FRIENDSHIP Steve....... THANK YOU (again) for ALL you have done for me and ALL that YOU ARE to me....... I would have been MORE LOST and feeling ALONE if you wouldnt have been there with your words of wisdom on "reaching out" and "tell your story to all who will listen as many times as you need to"....... You are a BEAUTIFUL SOUL..... THANK YOU for EVERYTHING. Love always, Jeannette
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    OMG Steve! I just read your "signature" and LOL!!! I never even realized what stressed was spelled backwards!!!! LOL Explains my SWEET TOOTH!!!! LOL
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    MISSING YOU Steve. I hope you are OK and YOU are always in my heart and on my mind. I APPRECIATE you being there when I really needed someone who understands. I emailed you but I dont know if you ever got it. Marijo and I have always been close BUT we are even closer now. She has become my SUNSHINE........ Her and I are very CONNECTED since my tragedy ( and hers). THANK YOU for encouraging me to "reach out". MISS YOU and sending you LOVE and HUGS......
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    hey new on here ty for getting back on my psot appreciate it
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    Thank you for the birthday wishes
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    hello steve good to back and talk to you have missed our chats hope to catch up soon. hugs kim
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    I do not git on here very often but when I do I look for answers you have posted or things you have written they always make me fell better.
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    Just wanted to say "HEY" to my DEAR FRIEND!!!! By the way I LOVE your pics!!!!! Love the horses!! BEAUTIFUL! I know things have been tough for you Steve BUT you have been here when I NEEDED YOU and THANK YOU SO MUCH for THAT. XXXOOO
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About steve.b

Basic Information

Date of Birth
December 2, 1961 (55)
About steve.b
i have 2 children with my wife cherie.
she also has 4 children from a previous marriage.
we have 4 grandchildren from the older 3.

i have officially been diagnosed with lupus and firbomyalgia.
i have a lot of secondary complaints as well, but they are not really diagnosed.

these secondary complaints include;
headaches, irritable bowel syndrome, dry mouth / throat (especially first thing in the morning),
dry eyes, circulation problems, heat rash (worse than most), skin problems and rashes,
sore joints, muscle weakness, unable to regulate my body temperature, reduced cognative skills,
i sweat when under pressure (physical or mental), mental pauses (where the brain stops for a second or so).

i grew up basically normal. could never compete well in sports.
no real health problems, just got everything that was going around.
always slightly unwell.
bad growing pains, awkward and clumsy.

my symptoms would wax and wain. sometimes good usually just annoying.
i had 2 or 3 mental breakdowns, due to stress. but usually i handled stress really well.
my mind would wander without me being able to focus properly.

i went to counsellors, but they could never relate to my description of my problem.
it was like i was in a helicopter overlooking my life, i could talk about it, (as a third party).

i was never great at school. i passed because everyone knew i tried hard. always only just making the grade.
orally, i did great, having to write what i knew, was a problem.

i had no staminer, sometimes even raising an arm was an issue.

what eventually led to my diagnosis, was pains in the legs and knees. and right shoulder blade.
i suspected blood clots, and was flying to and from work. working in the mines.
doctors could not find what was wrong, as usual.
eventually a doctor put enough together to send me to a rhuematologist.
i was origionally tested for lupus, to rule it out.

the fibromyalgia diagnoses came about 12 months later.
i have not worried testing for the other complaints, i treat them as symptoms of my main two illnesses.

In November 2012, my wife and I seperated.
My lupus has made me very impersonal, and I also fly off at unimportant things. My emotions are either on or off.
Luckily we still get on well. She just cannot live with the unemotional person I have become. My mood changes have destroyed my childrens relationship with me also.
They are afraid of me, and the mood changes.
pinjarra, western australia
family, horses
disability pensioner


When you're stressed, You eat Ice cream, Cake, Chocolate & Sweets. Why? Because stressed spelled backwards is DESSERTS.


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Recent Entries

the REAL cost of Lupus

by steve.b on 10-30-2012 at 06:48 PM
What do I mean by the real cost?
Lupus costs in every way!

Lupus causes us many difficulties.
Lupus causes us many hard ships.
Lupus causes our health to fail.

All of these things are a cost of having Lupus.
These are not what I am referring to.

As humans we identify people by there traits and personalities.
We say this is a kind old woman,
Or he is a grumpy old may.
Even she is a busy body.
These traits make

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