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    Yes I take 750 a day. I will start folic acid tonight. Do you get nerve pain with your spasms? They litterly move my vertebrae and pinch my nerves. I was finally able to wash my hair this AM, by living flat in the tub, due to the weakness and pain in arms. Do you get like this?

    Thank you for helping me. Tammy
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    Hi Steve, please can you help me? How much magnesium do you take each day? These spasms and nerve pain are wearing me down. Any advice would bless me. Thanks so much. Tammy
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    I am so sorry that you are going through this. I thank my mother daily for that saying because it has brought me through some tough times. You and your family will be in my thoughts. Please keep me updated.
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    Hi Steve,
    good to hear you are doing great!

    thanks for stopping by my profile.

  5. View Conversation
    Hi Steve,

    A large "Thank you" towards all our women issues, you've been great with Rob and that's really aprreciated.

    Hugs Terry x
  6. View Conversation
    You are so kind. I have come to appreciate you very much. No, the trip did not go as planned. I ended up with acute bronchitis and a trip to the ER yesterday. It appears I will have to find a new place for vacation. I guess change is good for everyone
  7. View Conversation
    Hi Steve,

    Just been busy with the family, how are you?

  8. View Conversation
    Please give her my love
  9. View Conversation
    When does Cherrie actually get out of hospital
  10. Well, no racing today. It's another rainy Saturday here. That's OK, as I feel like crap anyway. I meant to ask you, were you in the Air Force? I remember you talking about wrenching on jets. I'm a bit of an aviation buff. Also, I used to drive a "jet" of sorts. I drove an M1A1 Abrams tank in the Army, it has a turbine engine. One of the most enjoyable jobs I ever had.

    Hope all is well with you today,

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About steve.b

Basic Information

Date of Birth
December 2, 1961 (55)
About steve.b
i have 2 children with my wife cherie.
she also has 4 children from a previous marriage.
we have 4 grandchildren from the older 3.

i have officially been diagnosed with lupus and firbomyalgia.
i have a lot of secondary complaints as well, but they are not really diagnosed.

these secondary complaints include;
headaches, irritable bowel syndrome, dry mouth / throat (especially first thing in the morning),
dry eyes, circulation problems, heat rash (worse than most), skin problems and rashes,
sore joints, muscle weakness, unable to regulate my body temperature, reduced cognative skills,
i sweat when under pressure (physical or mental), mental pauses (where the brain stops for a second or so).

i grew up basically normal. could never compete well in sports.
no real health problems, just got everything that was going around.
always slightly unwell.
bad growing pains, awkward and clumsy.

my symptoms would wax and wain. sometimes good usually just annoying.
i had 2 or 3 mental breakdowns, due to stress. but usually i handled stress really well.
my mind would wander without me being able to focus properly.

i went to counsellors, but they could never relate to my description of my problem.
it was like i was in a helicopter overlooking my life, i could talk about it, (as a third party).

i was never great at school. i passed because everyone knew i tried hard. always only just making the grade.
orally, i did great, having to write what i knew, was a problem.

i had no staminer, sometimes even raising an arm was an issue.

what eventually led to my diagnosis, was pains in the legs and knees. and right shoulder blade.
i suspected blood clots, and was flying to and from work. working in the mines.
doctors could not find what was wrong, as usual.
eventually a doctor put enough together to send me to a rhuematologist.
i was origionally tested for lupus, to rule it out.

the fibromyalgia diagnoses came about 12 months later.
i have not worried testing for the other complaints, i treat them as symptoms of my main two illnesses.

In November 2012, my wife and I seperated.
My lupus has made me very impersonal, and I also fly off at unimportant things. My emotions are either on or off.
Luckily we still get on well. She just cannot live with the unemotional person I have become. My mood changes have destroyed my childrens relationship with me also.
They are afraid of me, and the mood changes.
pinjarra, western australia
family, horses
disability pensioner


When you're stressed, You eat Ice cream, Cake, Chocolate & Sweets. Why? Because stressed spelled backwards is DESSERTS.


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View steve.b's Blog

Recent Entries

the REAL cost of Lupus

by steve.b on 10-30-2012 at 06:48 PM
What do I mean by the real cost?
Lupus costs in every way!

Lupus causes us many difficulties.
Lupus causes us many hard ships.
Lupus causes our health to fail.

All of these things are a cost of having Lupus.
These are not what I am referring to.

As humans we identify people by there traits and personalities.
We say this is a kind old woman,
Or he is a grumpy old may.
Even she is a busy body.
These traits make

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