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    Oh wow - that is a lot.
    Thank you so much - that's actually really helpful. Since i've gotten on the forum i've been wondering if fibromyalgia might be something i have, and thats what i was wondering if you had as well.

    We do have a lot of the same symptoms :O except that I don't have any skin symptoms. Thanks again.

    How have you been lately?
  2. i wrot a description for you.
    but it was too long to post here.
    i have posted it in my profile.

    you can read it in my profile page "about me"
  3. View Conversation
    Hi there (: I was just wondering what your full diagnosis was? if you don't mind discussing it, that is.
    When I described my symptoms you mentioned it was almost like describing yours, so I was just curious to see because of the similarities.
    Thanks - hope you're doing well.
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    Thanks for the sugar info. I don't generally add sugar to anything I eat or drink so I'm more just having to cut out things I eat that have lots of sugar in it. I'm a shocker for chocolate and I know when I've had too much when my fingers swell! Hope u and ur family are well especially since your recent sad news
  5. Hi Steve,

    I put together a new photo album of some models I've built for a couple of museums. Given your interest in rocketry, I thought you might like to have a look. Here's a link-

    http://forum.wehavelupus.com/album.php?albumid=362

    Hope all is well with you.

    Rob
  6. View Conversation
    Oh...woops, I didn't realize it was so hard to see. It's an angel - one white wing, one black.
    Here's a bigger picture of it so you can see better - http://dark.pozadia.org/images/wallp...16-188543.jpeg

    I'm glad somebody finds me funny! Yes, I do tend to crack a few jokes to try and cheer people up and make light of the situation. Like you said, better than crying- and lots more fun!
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    Hi Steve,

    I hope yourself and your family are holding up fine since you posted your thread and i sincerely wish you all the very best.

    Terry x
  8. View Conversation
    Thanks so much for the welcome I was really glad to find that I didn't have to be diagnosed to be so welcomed into the community!
  9. View Conversation
    OH POOR ISAAC!!! Give him a big hug and go swimming in the dam and under the waterfall with him. When is his birthday?
    I can understand why Tam is determined to stay at work, kids do the funniest things. I really hope she spends a lot of time laughing at work while she waits for her operation.
  10. View Conversation
    How is Cherrie and your little girl? (They never grow up)
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About steve.b

Basic Information

Date of Birth
December 2, 1961 (52)
About steve.b
Biography:
i have 2 children with my wife cherie.
she also has 4 children from a previous marriage.
we have 4 grandchildren from the older 3.

i have officially been diagnosed with lupus and firbomyalgia.
i have a lot of secondary complaints as well, but they are not really diagnosed.

these secondary complaints include;
headaches, irritable bowel syndrome, dry mouth / throat (especially first thing in the morning),
dry eyes, circulation problems, heat rash (worse than most), skin problems and rashes,
sore joints, muscle weakness, unable to regulate my body temperature, reduced cognative skills,
i sweat when under pressure (physical or mental), mental pauses (where the brain stops for a second or so).

i grew up basically normal. could never compete well in sports.
no real health problems, just got everything that was going around.
always slightly unwell.
bad growing pains, awkward and clumsy.

my symptoms would wax and wain. sometimes good usually just annoying.
i had 2 or 3 mental breakdowns, due to stress. but usually i handled stress really well.
my mind would wander without me being able to focus properly.

i went to counsellors, but they could never relate to my description of my problem.
it was like i was in a helicopter overlooking my life, i could talk about it, (as a third party).

i was never great at school. i passed because everyone knew i tried hard. always only just making the grade.
orally, i did great, having to write what i knew, was a problem.

i had no staminer, sometimes even raising an arm was an issue.

what eventually led to my diagnosis, was pains in the legs and knees. and right shoulder blade.
i suspected blood clots, and was flying to and from work. working in the mines.
doctors could not find what was wrong, as usual.
eventually a doctor put enough together to send me to a rhuematologist.
i was origionally tested for lupus, to rule it out.

the fibromyalgia diagnoses came about 12 months later.
i have not worried testing for the other complaints, i treat them as symptoms of my main two illnesses.

In November 2012, my wife and I seperated.
My lupus has made me very impersonal, and I also fly off at unimportant things. My emotions are either on or off.
Luckily we still get on well. She just cannot live with the unemotional person I have become. My mood changes have destroyed my childrens relationship with me also.
They are afraid of me, and the mood changes.
Location:
pinjarra, western australia
Interests:
family, horses
Occupation:
disability pensioner

Signature


When you're stressed, You eat Ice cream, Cake, Chocolate & Sweets. Why? Because stressed spelled backwards is DESSERTS.

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View steve.b's Blog

Recent Entries

the REAL cost of Lupus

by steve.b on 10-30-2012 at 06:48 PM
What do I mean by the real cost?
Lupus costs in every way!

Lupus causes us many difficulties.
Lupus causes us many hard ships.
Lupus causes our health to fail.

All of these things are a cost of having Lupus.
These are not what I am referring to.

As humans we identify people by there traits and personalities.
We say this is a kind old woman,
Or he is a grumpy old may.
Even she is a busy body.
These traits make

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