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    Good good, how are you? I havent been around in a while, been so busy with work that I'm just knackered when I get home!! I made a trip down your neck of the woods last week for work. Pinjarra is cute, its like a little town but not so far out of Perth. I've lived in Perth my entire life and never been to Pinjarra before!!
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    glad things looking up for you same as taking one day at a time dealing with stress and pain cannot do anything else that is our life deal with what ever comes the best way we can very cold over here so my pain is bad. many hugs to you and family kim l
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    hi steve just checking in hope you and family doing okay hugs kim l
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    I'm glad to hear that your family is doing well (:
    It must be wonderful to finally have your wife back! Cancer certainly is scary..I hope everything turns out okay D:

    Good to hear your kids enjoy school, hehe. Not very often you hear that - and it's definitely a plus.
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    Hello Mr. Steve! (: Thank you for checking in on me, I appreciate it.
    How are you doing as of late? How is your lovely family?
  6. View Conversation
    Thank you Steve, I just posted a sorry. If I have upset you I am so so so so sorry.
    I think it is better that I stay away for a while before I upset anyone else. I am so ashamed.
    I am really sick, really bad (no excuse, please don't take it as one) I lost 2kg in 2 weeks and now I have just lost another 1kg in 2 days, I am really scared. Bye for now
  7. View Conversation
    Oh I am so happy you are with Cheri. Two are better than one(smile).

    My daughter has a vomiting condition called Hyperemesis. It happens to 1 in 1000 pregnant women. They can't even keep water down. She at 11 bags of iv and 4 days in the hospital. She's very sick, but they finally found some meds she can take that work and are fairly safe for the baby. Yesterday she was able to keep 4 bites of hello down. I was elated!

    I'm so glad your daughter is doing well. Isn't it amazing how the system depends are a perfect balance of chemicals to function? I should have called my endocrinologist long ago when I felt poorly. I kept thinking it was lupus or fibro. Instead lupus hit my thyroid pretty heavily again. Then add MENTALPAUSE and I lost some hope.

    You have a great day and I am so happy for you Steve.
  8. View Conversation
    Hi Steve, how are you and your family doing? Did your love return home yet? Is your health coming along? How is your daughter? I have a daughter in the hospital presently with pregnancy complications. It's hard to watch and be powerless to heal them. I hope you are well. Tammy
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    Thanks for the advice and support.
  10. View Conversation
    Huggggs... I am so glad that you became a part of our family. Something would definitely be missing if you were not here
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About steve.b

Basic Information

Date of Birth
December 2, 1961 (55)
About steve.b
i have 2 children with my wife cherie.
she also has 4 children from a previous marriage.
we have 4 grandchildren from the older 3.

i have officially been diagnosed with lupus and firbomyalgia.
i have a lot of secondary complaints as well, but they are not really diagnosed.

these secondary complaints include;
headaches, irritable bowel syndrome, dry mouth / throat (especially first thing in the morning),
dry eyes, circulation problems, heat rash (worse than most), skin problems and rashes,
sore joints, muscle weakness, unable to regulate my body temperature, reduced cognative skills,
i sweat when under pressure (physical or mental), mental pauses (where the brain stops for a second or so).

i grew up basically normal. could never compete well in sports.
no real health problems, just got everything that was going around.
always slightly unwell.
bad growing pains, awkward and clumsy.

my symptoms would wax and wain. sometimes good usually just annoying.
i had 2 or 3 mental breakdowns, due to stress. but usually i handled stress really well.
my mind would wander without me being able to focus properly.

i went to counsellors, but they could never relate to my description of my problem.
it was like i was in a helicopter overlooking my life, i could talk about it, (as a third party).

i was never great at school. i passed because everyone knew i tried hard. always only just making the grade.
orally, i did great, having to write what i knew, was a problem.

i had no staminer, sometimes even raising an arm was an issue.

what eventually led to my diagnosis, was pains in the legs and knees. and right shoulder blade.
i suspected blood clots, and was flying to and from work. working in the mines.
doctors could not find what was wrong, as usual.
eventually a doctor put enough together to send me to a rhuematologist.
i was origionally tested for lupus, to rule it out.

the fibromyalgia diagnoses came about 12 months later.
i have not worried testing for the other complaints, i treat them as symptoms of my main two illnesses.

In November 2012, my wife and I seperated.
My lupus has made me very impersonal, and I also fly off at unimportant things. My emotions are either on or off.
Luckily we still get on well. She just cannot live with the unemotional person I have become. My mood changes have destroyed my childrens relationship with me also.
They are afraid of me, and the mood changes.
pinjarra, western australia
family, horses
disability pensioner


When you're stressed, You eat Ice cream, Cake, Chocolate & Sweets. Why? Because stressed spelled backwards is DESSERTS.


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Recent Entries

the REAL cost of Lupus

by steve.b on 10-30-2012 at 06:48 PM
What do I mean by the real cost?
Lupus costs in every way!

Lupus causes us many difficulties.
Lupus causes us many hard ships.
Lupus causes our health to fail.

All of these things are a cost of having Lupus.
These are not what I am referring to.

As humans we identify people by there traits and personalities.
We say this is a kind old woman,
Or he is a grumpy old may.
Even she is a busy body.
These traits make

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