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    (Well it appears I talk too much because I had to put this into two posts!)

    Our seasons are different from one part of the country to another. The southern states seldom get snow in the winter but the Northern states just worry about "how much" they will get. We are looking at 110 and the northern states cry when it is 80 LOL While it seems that I am making fun of the yankees (they hate being called that LOL) Those of us in the south can't handle a light icing on the road. That is enough to make us shut the roads and close the schools if for no other reason then that we will all be killed if we try to drive on that ice.
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    I wish I would have "really" been here but I was checking in on my phone. I was working on computers and a network for some friends business and I haven't slept since since I woke on Wens Morning (so almost 48 hours with no sleep. I had been so ill and i had not been able to to do it so I am paying the price now. LOL Isn't it horrible that we fight so long to get better and then just put us back in this place again.

    How have you been? How is the family? The East Coast of the US is watching for a hurricane. I know Rob was making preparations. Texas is in such a horrible drought we are almost hoping for one of these. How is your weather this time of year? I have kind of figured out the time difference but not the seasons.

    I am going to take a warm bath because this many days without sleep has made me feel yucky!

    Thanks for checking in on me. It really is nice having family here.
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    Thank's so much for checkin on me, not been to well our heat index has been in the 104 range and humity through the roof,
    it makes the pain,fatigue,numbness and brain fog lot's worse.
    Im still putting around, How have you all been i hopw well!
    Thank's And big hug's & well wishe's your way Hope you
    have a great weekend! ~Diane ~
  4. Thanks for giving me a heads up about my profile page not showing properly. I do appreciate it!

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    That's wonderful!
    Cancer is such a terrifying thing, so its so relieving to know that she has recovered and is in such good hands (: I'm sure you must feel the same.
    Are you excited to be spending more time with her, with her being so close?
    I hope so - and I hope the rest of your family is doing wonderfully, and you as well.
    You're so positive - I love it! I hope you always keep that (:
  6. View Conversation
    Well hi there!
    Thank you, i'm glad you like it (: I figured since I say it all the time, and its kind of my motto, I might as well add it as a signature.
    How are you doing?
  7. View Conversation
    Hi back! My day was exhausting! Had to apprehend a child so was about to go down to Albany, then turns out they were trying to leave the state so had to organise for them to be apprehended at perth airport. it was a full on day! How about yours?!?
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    So glad to hear your family is doing much better!!!
  9. View Conversation
    dear steve thanks for letting us know how linda was i was worried, hope all your family getting better take care my friend hugs to you all kim l
  10. View Conversation
    haha yeah everyones tax $$ paying for my biannual payrises haha. Yes the boyfriend is going well, we live together so always have time for him when i get home from work...gotta have that work life balance so i dont go loopy.
    How's your family going, i know you were going through some tough times recently. hope all is looking up!
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About steve.b

Basic Information

Date of Birth
December 2, 1961 (55)
About steve.b
i have 2 children with my wife cherie.
she also has 4 children from a previous marriage.
we have 4 grandchildren from the older 3.

i have officially been diagnosed with lupus and firbomyalgia.
i have a lot of secondary complaints as well, but they are not really diagnosed.

these secondary complaints include;
headaches, irritable bowel syndrome, dry mouth / throat (especially first thing in the morning),
dry eyes, circulation problems, heat rash (worse than most), skin problems and rashes,
sore joints, muscle weakness, unable to regulate my body temperature, reduced cognative skills,
i sweat when under pressure (physical or mental), mental pauses (where the brain stops for a second or so).

i grew up basically normal. could never compete well in sports.
no real health problems, just got everything that was going around.
always slightly unwell.
bad growing pains, awkward and clumsy.

my symptoms would wax and wain. sometimes good usually just annoying.
i had 2 or 3 mental breakdowns, due to stress. but usually i handled stress really well.
my mind would wander without me being able to focus properly.

i went to counsellors, but they could never relate to my description of my problem.
it was like i was in a helicopter overlooking my life, i could talk about it, (as a third party).

i was never great at school. i passed because everyone knew i tried hard. always only just making the grade.
orally, i did great, having to write what i knew, was a problem.

i had no staminer, sometimes even raising an arm was an issue.

what eventually led to my diagnosis, was pains in the legs and knees. and right shoulder blade.
i suspected blood clots, and was flying to and from work. working in the mines.
doctors could not find what was wrong, as usual.
eventually a doctor put enough together to send me to a rhuematologist.
i was origionally tested for lupus, to rule it out.

the fibromyalgia diagnoses came about 12 months later.
i have not worried testing for the other complaints, i treat them as symptoms of my main two illnesses.

In November 2012, my wife and I seperated.
My lupus has made me very impersonal, and I also fly off at unimportant things. My emotions are either on or off.
Luckily we still get on well. She just cannot live with the unemotional person I have become. My mood changes have destroyed my childrens relationship with me also.
They are afraid of me, and the mood changes.
pinjarra, western australia
family, horses
disability pensioner


When you're stressed, You eat Ice cream, Cake, Chocolate & Sweets. Why? Because stressed spelled backwards is DESSERTS.


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Recent Entries

the REAL cost of Lupus

by steve.b on 10-30-2012 at 06:48 PM
What do I mean by the real cost?
Lupus costs in every way!

Lupus causes us many difficulties.
Lupus causes us many hard ships.
Lupus causes our health to fail.

All of these things are a cost of having Lupus.
These are not what I am referring to.

As humans we identify people by there traits and personalities.
We say this is a kind old woman,
Or he is a grumpy old may.
Even she is a busy body.
These traits make

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